This Week in Caregiving
Monday, April 16, 2018 Balancing the Burden of Caregiving for Women and Men
The Wilson Center | April 4, 2018
"Caregiving is an issue that affects people of all different backgrounds - men and women,' said C. Grace Whiting, president of the National Alliance for Caregiving. 'We are really talking about caregiving across a lifespan."
How You Can Cover the Costs of Caregiving
Redbook | April 11, 2018
"As if managing your family's health care wasn't a big enough job, there's also the inconvenient fact that it's unpaid work. Whether you're a caregiver now or might become one, here's how to be practical about the costs."
Long-Term Care Planning Misconceptions Are Holding Back Advisors And Consumers
Forbes | April 11, 2018
"Broad and harmful misconceptions, at both the financial advisor level and at the consumer level, are hindering better long-term care planning. So, let's take a look at the three biggest misconceptions and some practical steps to setting up a long-term care plan."
Workplace Absence for Motherhood or Caregiving Costs Women up to Seven Percent on Return
Benefits Pro | April 10, 2018
"It doesn't just cost women to leave the workplace, whether to raise children or care for an older relative. There's a financial penalty when they come back, too. Employees who leave the workforce for a year or more come back to a salary that's 7.3 percent less than an employee who is currently employed in the same job."
Costs of 'Informal' Caregiving for Heart Disease to Reach $128 Billion by 2035
Reuters | April 10, 2018
"While these caregivers certainly need all the help they can get - and more - they are not the only caregivers facing long-term crushing financial and emotional burdens,' Levine, who wasn't involved in the study, said by email. 'Cardiovascular disease in its many forms affects millions of people in profound ways, and, as the report makes clear, the problem will grow at an alarming rate in the next 20 or more years."
THIS WEDNESDAY: National Alliance for Caregiving Webinar
April 18, 2018 | 4pm EST | Online
The National Alliance for Caregiving and Global Genes recently released Rare Disease Caregiving in America, a national research study capturing the experiences of more than 1,400 family caregivers of children and adults with a rare disease, condition, or disorder across 400 different diseases. Findings in this first-of-its-kind national snapshot paint a picture of friends and families facing emotional, financial, physical, and social strain with little support from outside resources. Join this national webinar this Wednesday for an overview of this groundbreaking report and to share your questions and insights into rare caregiving. Register HERE.
Caregiving Research
Tools for Distance Delivery of an Evidence-based AD Family Caregiver Intervention
The New York University Caregiver Intervention (NYUCI) study is extending a final call to caregivers to receive this free year-long telehealth support. To participate, caregivers must live with a spouse/partner with reported memory loss, be comfortable using a computer, and have a family member/friend willing to participate. Caregivers in NY, VA, AL, TX or WI should reach out TODAY to be connected with a counselor with open capacity! Caregivers should contact Tadessech Hailu at NYU by phone: 646-754-2291 or by email no later than April 30th. Learn more HERE.
Patient and Caregiver Preference Research Request
The AD PACE What Matters Most study is designed to assess the treatment-related needs, preferences, and priorities of people with Alzheimer's disease (AD) and their care partners across the continuum of the disease. As part of this study, the team would like to leverage insights about the priorities and preferences of AD patients and/or care partners that have already been collected by other organizations. If you are aware of any such research and would be willing to share it with the AD PACE team to inform this research, your contribution would be greatly appreciated. To share such information, please email Brett Hauber and Debra Lappin.
Caregiving Resources
Repisodic Caregiving Tools
Repisodic is a healthcare technology company dedicated to helping patients, families, and caregivers find the best post-acute and senior care available. Their website includes the most comprehensive, unbiased profiles of every Medicare certified post-acute care provider and senior living facility in the country. Learn more about their available tools and resources HERE.
SeniorLink Solutions
SeniorLink is committed to pioneering solutions that bring care teams, family caregivers and patients together with technology to transform the caregiving experience. Seniorlink stands with the Caregiver Nation, honoring caregivers and their families and ensuring they will never be alone on their daily journey of providing compassionate care. Learn more HERE.
State and Local Coalition Updates
Utah Coalition for Caregiver Support Respite Committee
Utah Coalition for Caregiver Support has started a Respite Committee. They are helping families that need respite for their loved ones by connecting them with personal care agencies who have volunteered to assist. If you know of anyone who could use this service please contact Amy Muller. Learn more about the Utah Coalition for Caregiver Support HERE.
Naomi Feil to Share Validation Method with San Antonio Caregivers
This May 24th workshop is a once-in-a-lifetime opportunity to meet and learn from dementia expert Naomi Feil on how to use validation to successfully communicate with and reach cognitively impaired individuals. Validation is a practical methodology for empathizing with life struggles, allowing painful feelings to be expressed, acknowledged, and "validated" by a trusted listener. Learn more and register HERE.
Caregiving Events and Webinars
Childhood Cancer Action Days
April 23-24, 2018 | Washington, DC
You're invited to join the Alliance for Childhood Cancer for the 7th Annual Childhood Cancer Action Days. This two-day event in Washington brings together a strong community to advocate for important childhood cancer issues currently before Congress. A strong showing of advocates at Action Days 2018 is more crucial than ever. Learn more and register HERE.
Webinar: Alzheimer's Disease and Spouse Caregiver Support
April 25, 2018 | 11am EST | Online
This webinar, hosted by Family Caregiver Alliance, will identify the issues and challenges that confront the spouse/partner caregiver of a person living with dementia at each stage of the illness. Common themes will be highlighted and the importance for family caregivers to appreciate and respect individual differences-as they chart the course of their caregiving journey-will be demonstrated. Learn more and register HERE.
RARE Patient Advocacy Symposium
May 19, 2018 | Philadelphia, PA
Global Genes and the University of Pennsylvania Orphan Disease Center (ODC) have announced the third annual Patient Symposium, in conjunction with UPenn's Million Dollar Bike Ride (MDBR). The Symposium has been developed for patient advocates to learn, connect and be inspired. Learn more and register HERE.
Mental Health America's 2018 Annual Conference: Fit for the Future
June 14-16, 2018 | Washington, DC
When it comes to mental health, is the United States languishing in the past, or are we fit for the future? MHA's 2018 Annual Conference will tackle this very question. The Fit for the Future theme will explore what we can do personally as individuals to keep ourselves healthy in the 21st Century. Learn more and register HERE.
Alzheimer's Association Advocacy Forum
June 17-19, 2018 | Washington, DC
The Alzheimer's Association AIM Advocacy Forum is the nation's premier Alzheimer's disease advocacy event. Join more than 1,000 advocates in Washington, D.C. to advocate for research, care, and support services. The Advocacy Forum is where you need to be to continue playing a crucial role in the fight against the disease. Learn more and register HERE.
n4a Annual Conference and Tradeshow
July 28-August 1, 2018 | Chicago, IL
The n4a Annual Conference & Tradeshow is the largest and most prestigious gathering of local aging leaders and professionals in the United States. More than 1,000 Aging Network professionals, as well as nationally renowned decision-makers and experts, participate in the Conference because they know that the issues and programs they care about most will be showcased. Learn more and register HERE.
Global Genes RARE Patient Advocacy Summit
October 3-4, 2018 | Washington, DC
The RARE Patient Advocacy Summit is the can't-miss event of the year for rare disease stakeholders. The Summit is the largest gathering of rare disease patients, advocates, and thought leaders worldwide. Take advantage of this opportunity to connect and learn from more than 200 experts in rare disease leading 100 educational sessions. Learn more and register HERE.
Send your caregiving news and events to
info@caregiving.org.
National Alliance for Caregiving
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