This Week in Caregiving
Monday, July 16, 2018
Paid Family Leave Can Make It Through Congress This Year, Predicts Key GOP Senator Forbes | July 12, 2018
"Congressional Republicans and Democrats can find common ground this year to enact paid family leave legislation, Senate Family Policy Subcommittee Chair Bill Cassidy predicted Wednesday afternoon. However, he acknowledged an already full Senate calendar and deep differences on how to pay for paid time off for workers among the political parties make the prospects slim. A consensus exists among both parties that paid family leave is a destination worth reaching."
SCAN Launches Millennial-Focused Caregiver Campaign
McKnight's Long-Term Care News | July 12, 2018
""A lot of the narrative about millennials is incorrect,' Bruce Chernof, President and CEO of the SCAN Foundation, told McKnight's. 'Millennials, in particular, face a really hard time in their lives. While they were trying to get into jobs and workforce training and doing all the things that may have created the perception that they are focused, an enormous number also have been recurrent caregivers. Candidly, that's very different than for previous generations."
Experimental Drugs Boost Elderly Immune Systems, Raising Hopes For Anti-Aging Effects
NPR | July 11, 2018
"Scientists on the hunt for anti-aging drugs say they've made an advance with tantalizing potential: Two experimental drugs appear to safely boost the immune systems of elderly humans. The researchers stress that more research is needed to confirm the findings. And at least one researcher says the findings are based on a relatively small number of people and used methods that could produce misleading results. Still, many researchers say the findings are encouraging."
UMN Expert: Aging U.S. Population Puts Focus on Family Care
University of Minnesota | July 10, 2018
"Although it is heartening that this reliance on families can keep older persons with health needs out of residential long-term care settings, such care is not without its own costs. Future policy and practice must not only acknowledge the presence of family members as essential to how care is provided to older persons in need, but also continue to expand evidence-based programs to support such families."
Feel Like The Last Friend Standing? Here's How To Cultivate New Buds As You Age.
Kaiser Health News | July 9, 2018
"Friendship in old age plays a critical role in health and well-being, according to recent findings from the Stanford Center on Longevity's Sightlines Project. Socially isolated individuals face health riskscomparable to those of smokers, and their mortality risk is twice that of obese individuals, the study notes."
Caregiving Policy Updates:
Senate Finance Committee Holds Hearing on Paid Family Leave
Last week, the U.S. Senate Finance Committee held a hearing examiningcurrent legislative options regarding paid family leave, such as the Family and Medical Insurance Leave (FAMILY) Act (S.337/H.R. 947). This bill would establish a national paid leave program and is currently the strongest and most well-rounded proposal to ensure that caregivers across the lifespan have access to paid leave. Watch the full hearingHERE and learn more about the Alliance's advocacy work and legislation that has the potential to impact family caregivers HERE.
PCHETA Voted Out of House Energy & Commerce Committee
Last week, the Palliative Care and Hospice Education and Training (PCHETA) Act (H.R. 1676, S. 693) was unanimously reported out of the House Energy and Commerce Committee for consideration by the full House. This bill would increase the number of permanent faculty in palliative care at accredited allopathic and osteopathic medical schools, nursing schools, and other programs to promote education and research in palliative care and to support the development of faculty careers in academic palliative medicine. Read more about the bill HERE.
Report from the California Task Force on Family Caregiving
The California Task Force on Family Caregiving was established to address the challenges encountered by California's 4.5 million family caregivers. The Task Force has now completed its final report of policy recommendations to the California Legislature after a two-year process. The recommendations described in the report are intended to bridge the gap between existing policies and the challenges faced by California's caregivers. Read the report HERE.
Caregiving Media Opportunity:
Seeking Caregivers Who Have Shared Responsibilities with Siblings
Julie Halpert, a freelance journalist, is writing a piece focused on the tensions that can arise when siblings are engaged in the care of a parent. If you experienced tension with a sibling over how to care for an aging parent and then found a way to resolve that tension, Julie would like to speak with you. If this interests you, please email Julie atjhalpert333@gmail.com with a brief description of your situation and how it was resolved, along with your contact information. Ideally, Julie would like to hear from you by tomorrow, July 17th.
Caregiving Resources:
The Lilly Diabetes Solution Center
Beginning August 1, a new dedicated helpline - The Lilly Diabetes Solution Center - will help people find solutions that best fit their personal circumstances. Over the past few years, Lilly has met with patients, caregivers, healthcare providers, advocacy organizations, and lawmakers across the diabetes community to discuss potential solutions. Operators at the Solution Center will guide people who have trouble paying for their Lilly insulin through a suite of solutions. Learn more HERE.
Pancreatic Cancer Action Network: Patient Central
Patient Central is the place to contact when facing pancreatic cancer. They provide free, personalized information about the disease, support services, and extensive resources. Through their Patient Services, they help determine best treatment options, assist in clinical trial enrollment, and help patients maintain good quality of life. PanCAN works with more patients and caregivers than any other pancreatic cancer organization in the world. Learn more HERE.
American Bankers Association Foundation: Safe Banking for Seniors
Seniors lose an estimated $2.9 billion each year to fraud. The American Bankers Association Foundation launched the Safe Banking for Seniors (SBFS) campaign to combat elder financial abuse and to support seniors and their caregivers. The core feature of the program involves connecting communities with their banks to offer free banker-led presentations on: 1)acting as a financial caregiver; (2) choosing a financial caregiver; 3) avoiding and identifying scams, and 4) preventing identity theft. Go HEREto connect with a bank in your community and join the national effort to empower seniors in protecting their finances.
Caregiving Events and Webinars:
Webinar: The Game-Changing Impact of Empowering Patients with Health Data
July 19, 2018 | 1:00-2:00PM ET | Online
During this free discussion with thought leaders working in health data, FasterCures will confront some of the questions surfacing around health data access, including: What are the roadblocks to patient access of health data? What are the legal protections for patients and their health information? What are patients currently doing with health data, and what do they want to be doing? Learn more and register HERE.
Alzheimer's Association International Conference
July 22-26, 2018 | Chicago, IL
The Alzheimer's Association International Conference (AAIC) is the largest and most influential international meeting dedicated to advancing dementia science. Each year, AAIC convenes the world's leading basic science and clinical researchers, next generation investigators, clinicians, and the care research community to share research discoveries that will lead to methods of prevention and treatment. Learn more and registerHERE.
n4a Annual Conference and Tradeshow
July 28-August 1, 2018 | Chicago, IL
The n4a Annual Conference & Tradeshow is the largest and most prestigious gathering of local aging leaders and professionals in the United States. More than 1,000 Aging Network professionals, as well as nationally renowned decision-makers and experts, participate in the Conference because they know that the issues and programs they care about most will be showcased. Learn more and register HERE.
Global Genes RARE Patient Advocacy Summit
October 3-4, 2018 | Irvine, CA
The RARE Patient Advocacy Summit is the can't-miss event of the year for rare disease stakeholders. The Summit is the largest gathering of rare disease patients, advocates, and thought leaders worldwide. Take advantage of this opportunity to connect and learn from more than 200 experts in rare disease leading 100 educational sessions. Learn more and register HERE.
National Caregivers Conference
October 11, 2018 | Woodbridge, NJ
The National Caregivers Conference, "Health, Technology, and the Family Caregiver," will bring innovative solutions to the increasing demand on family caregivers across the nation while showcasing projects that use technology to improve health and quality of life. This year's conference will feature the nation's first Caregiver Shark Tank. Learn more and register HERE.
National Caregiving Conference
November 8-11, 2018 | Chicago, IL and Online
Caregiving.com's annual conference brings together family caregivers and former family caregivers from across the country. This year's conference theme, Our Best Selves, encourages us to look at how we do our best during an experience that feels like the worst. Their conference features presentations and panel discussions from family caregivers and former family caregivers. Learn more and register HERE.
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National Alliance for Caregiving www.caregiving.org
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