Down's Heart Group Issue 54 of Down's Heart Group newsletter for Thursday, 9 April 2015

Down's Heart Group Issue 54 of Down's Heart Group newsletter for Thursday, 9 April 2015
this email is to let you know you can access our latest newsletter, Issue 54, by following the link
http://www.dhg.org.uk/getfile.aspx?182&e=.pdf or by going to the website www.dhg.org.uk and searching on the newsletter tab.
Please see below any urgent news that missed the deadline.
We still have places for our bi-annual conference and family fun weekend on 16th and 17th May. It promises to be a great event, with high quality speakers and workshop leaders.

Down's Heart Group conference and family weekend will soon be here!
16th and 17th May 2015
"Lifelong Learning"
Speakers include;
Prof Rob Tulloh - consultant paediatric cardiologist, Dr Ben Thomas - LD adviser to the government, Gwen Moulster - Lead on Health Equalities Framework and Suzanne Hodgkiss - education specialist.
Afternoon workshops, creche, stalls.....
The weekend includes:
welcome supper on Friday evening, conference on Saturday, dinner and disco on Saturday evening and family day on Sunday
Please see the website or email info@dhg.org.uk for a booking form or for more information

Call yourself a petrolhead?!
Family Day at the Dunlop 24hr Race, Silverstone
Children's Heart Federation invites you to Silverstone, Northamptonshire on 25th April
£10 returnable deposit per heart family
Join CHF for a great day out at Silverstone for the start day of the Dunlop 24hr Race - and support the CHF500 team.
This is an exciting one-off event not to be missed! CHF have been chosen as the charity 'sponsor' for a race team, entering a Porsche 968. Our heart families will enjoy:
Entry to the world famous Silverstone race track
VIP parking
Watch the warm up and qualifying races in the morning
Visit the CHF team garage, meet the team and see the CHF500-liveried car (subject to the garage schedule)
See the start of the Dunlop 24 hour race and support team CHF500!
Access to the festival and fair ground
Access to the CHF tent between 10am and 4pm
Come join CHF for a great day out at the nation's racetrack.
www.chfed.org.uk
DHG has received the following research participation request from a group of postgraduate student’s studying 'Development, Disorders and Clinical Practice' at the University of York, looking for UK parents of children with Down's Syndrome aged 2-18years.
Dear Parents/ Guardians,
We would like to invite you to participate in a research project being conducted by postgraduate masters students at the University of York. This research project is investigating the link between parent-child relationships and levels of stress in parents of children with Down’s syndrome (DS) and 22q11 Deletion Syndrome (22q11DS).
We will be comparing parents of children with developmental disorders with parents of children without developmental disorders, looking also at the effect of the family and child characteristics. We are interested in hearing from parents of children aged 2-18.
Participation is completely voluntary and should last no longer than 20 minutes. You will be requested to complete an online survey, as well as providing background information on your family and child. Rest assured that all online forms are confidential, and secured on the University network. All participants will be anonymous and will only be identified by an ID number.
All participants are given the opportunity to win a £25 amazon voucher for completing the survey.
To find further details about the research or if you are interested in taking part, please visit our survey at; www.tinyurl.com/yorkpsychology
Our mailing address is:
info@dhg.org.uk
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