National Alliance for Caregiving for Friday, September 1, 2017
This Week In Caregiving
August 26 - September 1, 2017
Rare disease families front and center in upcoming caregiving studyPR Web (National Alliance for Caregiving) | August 31, 2017
"To study the impact of rare disease on family caregivers, the National Alliance for Caregiving, in partnership with rare disease patient advocacy organization, Global Genes, is launching a "first-of-its-kind" national snapshot of rare disease caregivers. This fall, the two groups plan to release a national survey aimed at collecting feedback from over 1,000 family caregivers of children and adults with rare diseases."
Burdens of spousal caregiving alleviated by appreciation, study finds
Science Daily | August 28, 2017
"When discussing spousal care, the draining demands of caregiving and the uplifting effects of helping stand in apparent contrast to one another. But recent research shows that the time caregivers spend actively helping a loved one can improve the caregiver's sense of well-being -- and now, Poulin, an expert in empathy, human generosity and stress, is part of a research team that has published a study exploring why that's the case."
Robo-caregiving & why you might delegate your loved ones to a robot
Big Think | August 28, 2017
"Robotics is already changing how we live, shop, invest, travel, and soon, robo-caregivers will transform how we provide care. Advances in artificial intelligence will deliver extraordinarily innovative services in support of our loved ones. However, the use of robots to care for our children, elderly and disabled will also give rise to some very human questions."
How HIPAA regulations can encourage caregiver, family engagement
Patient EngagementHIT | August 28, 2017
"Being a patient does not have to be a solo experience. Many patients benefit from caregiver and family engagement - and many providers encourage collaborative decision-making. While HIPAA regulations exist to secure the rights of patients to keep their health information private, the law can also enable approved personal representatives to help individuals receive the best possible care."
Dementia dramatically increases family expenses
Reuters | August 25, 2017
"The average lifetime cost of care after a diagnosis of dementia in the U.S. is about $322,000, and families pay about 70% of that, new research suggests. The cost of care is $185,000 higher for someone with dementia than for someone without it, the study authors wrote in the Journal of the American Geriatrics Society, online August 17."
Cool Post of the Week
Singing in the Rain - Caring for My Family Members with Parkinson's Disease Psychosis
Family Caregiver Alliance, Mary Ann Conway
Get Involved
Hurricane Harvey Resources for People with Disabilities, Access & Functional Needs
Ongoing
In response to the destruction of hurricane Harvey, FEMA has released various resources to help individuals with disabilities, access, and functional needs. Find the resources here. If you are looking to donate funds to help support older adults and those with disabilities affected by hurricane Harvey, we encourage you to donate to Leading Age here.
Support proposed legislation to expand Health Savings Accounts
Deadline: September 6, 2017 | 5:00 PM ET
Congressman Sam Johnson recently proposed legislation to expand Health Savings Accounts to help seniors receive care at home. Including home care services as a qualified medical expense in Health Savings Accounts will greatly help America's seniors and their families. For further information and to take action please contact the Caregiver Action Network (CAN) at (202) 454-3970.
Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards Application
Deadline: September 11, 2017 | 8:00 PM ET
With support from The Rosalinde and Arthur Gilbert Foundation, Family Caregiver Alliance (FCA) is overseeing the annual Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards program, now in its 10th year! Find the application and more information here.
Public Comment for Healthy People 2030
Deadline: September 29, 2017
The U.S. Department of Health and Human Services (HHS) is soliciting written comments on the proposed framework for Healthy People 2030 that was developed by the Secretary's Advisory Committee on National Health Promotion and Disease Prevention Objectives for 2030 (Committee). This framework includes the Healthy People 2030 vision, mission, foundational principles, plan of action, and overarching goals - and it will guide the selection and prioritization of objectives for Healthy People 2030. Learn more and comment here.
Research Opportunities: Second Annual Caregiving Conference
Deadline: October 15, 2017
Have you applied to conduct a caregiving research project and now need participants? Have you received a grant to research an issue and would like family caregivers and former family caregivers to participate in your research? CareGiving.com would love for you to conduct your research at their Second Annual National Caregiving Conference on November 10 and 11 in Chicago. Learn more and sign up here.
International Alliance of Carer Organization (IACO) Event
The International Carers Conference theme - Caring into the Future: the new world? - will focus on innovation, partnerships, future challenges and new opportunities. A stimulating program is being developed with challenging debates, thought-provoking presentations, interactive workshops and new exhibition zones to inspire, inform and drive forward sector collaboration. We are honored that the Alliance's President and CEO Gail Gibson Hunt (USA) and IACO Executive Advisor Rick Greene will participate.
What: 7th Annual International Carers Conference
Where: Adelaide, South Australia
When: October 4-6, 2017
Register here
Caregiving Events
AFA National Educating America Tour
September 14, 2017 | Washington, DC
AFA's Concepts in Care Educational Conferences will provide individuals throughout the nation the opportunity to hear experts on topics to include: access to healthcare, transitioning from home to residential care setting, safeguarding your space, long-term care, perceptions of aging, and clinical trials and research. Register here.
6th Annual Rare Patient Advocacy Summit
September 14-15, 2017 | Irvine, CA
The RARE Patient Advocacy Summit is a source of motivation and activation for families whose lives have been affected by rare disease. Annually, corporate stakeholders attend the event and become immersed in rare disease advocacy and gain valuable knowledge on patient and caregiver perspectives. Register here.
Alzheimer's Learning Day Webinar
September 21, 2017 | Webinar
Those living with Alzheimer's may include our parents, spouses, clients, co-workers, neighbors or grandparents, and they need us to understand more about the disease. We all have something to learn or share about Alzheimer's, as well as other forms of dementia. Join the Alliance and Home Instead on Alzheimer's Learning Day by pledging to participate and join us in participating in the family caregivers webinar. Register here.
Aging and I/DD: Planning for Growing Older Webinar
September 26, 2017 | Webinar
Dr. Kathie Bishop will review the aging process and discuss what successful aging looks like for people with I/DD. Kathie will address planning and skill-building to support people with complex medical needs and adults with I/DD who experience cognitive or functioning loss, possibly related to dementia. Dr. Bishop will also describe how people with I/DD and their families can work together to advocate to and with health care professionals. Register here.
Us Against Alzheimer's: The National Alzheimer's Summit
October 3-5, 2017 | Washington, DC
The Summit will bring together the very best minds in Alzheimer's and dementia research and policy. Leaders and advocates from diverse communities will explore compelling topics, including early detection and diagnosis, brain health and prevention, progress on our path to an Alzheimer's cure and the economic impact of the disease for those living with Alzheimer's and their care partners. Register here.
Save the Date: Solving America's Long-Term Care Crisis
October 4, 2017 | Washington, DC
Please join Genworth's 2017 Long Term Care Symposium in Washington, D.C. to discuss the long term care challenges facing families, states and the private insurance market.This event will focus on specific solutions- public policy, regulatory, and others- to stem the growing crisis. Register for this event here.
2017 ARCH National Lifespan Respite Conference: Take Off with Respite!
October 11-13, 2017 | Huntsville, AL
The conference theme,Take Off with Respite!, reflects the incredible history of the space industry in Huntsville, AL, also known as Rocket City USA. It also reflects the mission of the respite care network - to rise to meet challenges, heighten awareness, and push innovation to ensure a safe landing for the nation's 43 million family caregivers. Register here.
National Research Summit on Dementia Care: Building Evidence for Services and Supports
October 16-17, 2017 | Bethesda, MD
The National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and the Foundation for the National Institutes of Health through private sector support. Register here.
The 30th Anniversary Summit of the Rosalynn Carter Institute for Caregiving
October 25-27, 2017 | Americus, GA
Join the Rosalynn Carter Institute for Caregiving for their 30th Anniversary Summit. The two-day summit will bring together caregivers of individuals with chronic illnesses and/or disabilities across the lifespan along with leaders who enable caregiver support including stakeholders, funders, and policymakers. Early bird ticket prices end August 31. Learn more & register.
Second Annual Caregiving Conference
November 10-11, 2017 | Chicago, IL
The Second Annual National Caregiving Conference brings together family caregivers, former family caregivers and professionals who work with family caregivers. Anyone interested in the caregiving experience and issues impacting family caregivers is welcome to attend. This year's conference theme is Our Boldest Hours: Before. During. After. Register here.
Do you have family caregiving news to share? Send to Jessica at jessica@caregiving.org
National Alliance for Caregiving
4720 Montgomery Lane, Suite 205
Bethesda, Maryland 20814, United States
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