Join Us: Rare Disease Capitol Hill Briefings
Thursday, May 17, 2018 | Washington, DC
7:30 AM (House Briefing) and 9:00 AM (Senate Briefing)
The National Alliance for Caregiving, in collaboration with Global Genes, invites you to attend policy briefings on the recently released research study, Rare Disease Caregiving in America. This important new study captures the experiences of more than 1,400 family caregivers of children and adults with a rare disease, condition, or disorder across 400 different diseases. Read the full report HERE.
These two briefings will explore policy recommendations and will highlight the unique challenges facing rare disease caregivers across the United States.
Register for the House Briefing HERE.
Register for the Senate Briefing HERE.
Send your caregiving news and events to info@caregiving.org.
National Alliance for Caregiving
www.caregiving.org
STAY CONNECTED:
National Alliance for Caregiving
4720 Montgomery Lane, Suite 205
Bethesda, Maryland 20814, United States
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