"This Week in Caregiving" for Monday, May 21, 2018
Policy Briefings on First-of-its-Kind Study Uncovering Impact of Rare Disease on Family CaregiversPR Web | May 16, 2018
"The National Alliance for Caregiving, in collaboration with Global Genes, [hosted] policy briefings on the recently released research study, Rare Disease Caregiving in America. Report authors, caregivers and policymakers [shared] the findings, as well as personal experiences and policy recommendations."
Trump Donates Quarterly Salary to Department of Veterans Affairs
The Hill | May 17, 2018
"President Trump donated his salary for the first quarter of 2018 to the Department of Veterans Affairs, the White House said Thursday.White House press secretary Sarah Huckabee Sanders said Trump's $100,000 quarterly salary will go toward the VA's caregiver programs."
The Prisoners Who Care for the Dying and Get Another Chance at Life
The New York Times | May 16, 2018
"Each of the workers has his own style of caregiving, but if there is one trait that stands out about Murillo, it is the tenderness with which he handles the patients. When Jimmy Figueroa needed a shower, Murillo stood in the stall with him to make sure he didn't fall, [and] fidgeted with the water temperature until it was just right."
How Companies Can Support Their Employees Who Provide Long-term Care to Family Members
Portland Business Journal | May 16, 2018
"Support from a person's entire network - friends, colleagues, neighbors, family - goes a long way toward helping them survive the illness and death of loved ones. 'Having an employer that is compassionate, a company's that's leading from the heart, made it easier for me,' Kreiling said."
Local Charity Helps Youth Caregivers in Palm Beach County
CBS 12 | May 9, 2018
"Gutiérrez takes care of his mother, Jennifer Gutiérrez, who is battling multiple sclerosis, his grandmother who has predementia and his younger brother Jacob, who has a cranial nerve disorder. Meanwhile, his father works two jobs to support the family. 'Without Jonathan, this house couldn't survive,' Jennifer Gutiérrez said."
Survey - The Caregiver Factor
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If you've taken on caregiving for a loved one in recent years and face the challenges of balancing the healthcare needs of your loved one with your own needs, we want to hear your views.
Rx4Good partnered with the National Alliance for Caregiving and more than 70 other organizations on this survey because of their keen interest in helping you, the caregiver, navigate medical and care decisions that affect you and your loved one.
Your insights will help lead to better support for caregivers in this important role. Thank you in advance for your participation!
Take the survey HERE.
Caregiving Research
AP-NORC Poll: Young Adults Feel Stress of Long-term Care
"Most young adults haven't given much thought to their own needs as they get older, but a significant number are already providing long-term care for older loved ones, according to a new poll by the Associated Press-NORC Center for Public Affairs Research. And while those who have caregiving experience put in fewer hours than their older counterparts, they're more likely to feel stressed out by the experience." Read more HERE.
Family Caregiver Perceptions of Prescription Opioid Medication
The World Health Organization (WHO) has called for prompt detection and treatment of mental health and substance use disorders in elderly adults. Despite this call to action, currently there are no screening tools designed to specifically identify elderly adults at risk of developing Opioid Use Disorder. Researchers at William James College are collecting data from the perspective of family caregivers to identify changes in the behavior of elderly adults since being prescribed opioid medication. Learn more and take the survey HERE.
Research Opportunities: Third Annual National Caregiving Conference
Are you conducting a caregiving research project and now need participants? Have you received a grant to research an issue and would like family caregivers and former family caregivers to participate in your research? Caregiving.com would love for you to conduct your research at their Third Annual National Caregiving Conference on November 9, 10, and 11 in Chicago. Learn more and sign up HERE.
Caregiving Events and Webinars
Digestive Disease Week
June 2-5, 2018 | Washington, DC
Recognized as one of the top 50 medical meetings by HCEA, Digestive Disease Week (DDW) is the world's largest gathering of physicians, researchers and industry in the fields of gastroenterology, hepatology, endoscopy and gastrointestinal surgery. Attend high-quality sessions where you can get practical and useful take-home information. Learn more and register HERE.
Mental Health America Hill Day
June 12, 2018 | Washington, DC
Yearly, Mental Health America advocates visit with Congress to share the priorities of a leading behavioral health organization. At their congressional reception, select Members of Congress make brief remarks based on their exemplary leadership in advancing legislation that promotes and protects the behavioral health of Americans. Learn more and register HERE.
The Millennial Perspective: An Intergenerational Discussion on Retirement Solutions
June 20, 2018 | Washington, DC
This annual Women's Institute for a Secure Retirement (WISER) forum features the iOme Challenge winning team of college students who will discuss their advisory paper in response to this year's Challenge question. A keynote speaker, panels of experts and congressional staff leaders will also discuss current issues and legislative proposals. Learn more and register HERE.
Healthy Aging Summit
July 16-17, 2018 | Washington, DC
The 2018 Healthy Aging Summit will explore ways to keep Americans healthy as they transition into older adulthood and maximize the health of all older adults. The Summit will focus on prevention strategies that encourage healthy lifestyles, planning for aging, and improving the use of preventive services. Learn more and register HERE.
n4a Annual Conference and Tradeshow
July 28-August 1, 2018 | Chicago, IL
The n4a Annual Conference & Tradeshow is the largest and most prestigious gathering of local aging leaders and professionals in the United States. More than 1,000 Aging Network professionals, as well as nationally renowned decision-makers and experts, participate in the Conference because they know that the issues and programs they care about most will be showcased. Learn more and register HERE.
Global Genes RARE Patient Advocacy Summit
October 3-4, 2018 | Irvine, CA
The RARE Patient Advocacy Summit is the can't-miss event of the year for rare disease stakeholders. The Summit is the largest gathering of rare disease patients, advocates, and thought leaders worldwide. Take advantage of this opportunity to connect and learn from more than 200 experts in rare disease leading 100 educational sessions. Learn more and register HERE.
Send your caregiving news and events to
National Alliance for Caregiving www.caregiving.org
STAY CONNECTED:
National Alliance for Caregiving
4720 Montgomery Lane, Suite 205
Bethesda, Maryland 20814, United States
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