Monday, May 7, 2018
How Our Friendship Survived Mental Illness
Women's Health | May 1, 2018
"Just as putting your oxygen mask on first on a plane better equips you to help others, taking steps to protect your own well-being can make you a more effective caregiver, says C. Grace Whiting, president and CEO of the nonprofit National Alliance for Caregiving. She suggests a few: reflect on the rewards, tap into emotional backup, enlist day-to-day support, and talk to a financial planner."
The National Fight for Paid Leave Has Moved to Statehouses
Slate | May 2, 2018
"There are close to 1.5 million people with new access to paid family leave since 2018 began,' said Cotter. As more people are granted access to paid family leave, either through state laws or through major employers like Walmart and Amazon, expectations begin to shift."
"Smart" Dresser Prototype Guides People with Dementia
NYU News Release | May 1, 2018
"A new study published in JMIR Medical Informatics describes how a 'smart home' prototype may help people with dementia dress themselves through automated assistance, enabling them to maintain independence and dignity and providing their caregivers with a much-needed respite."
Family Caregivers Finally Get A Break - And Some Coaching
NPR | April 27, 2018
"Across the country, community groups, hospitals, government agencies and nonprofits are starting to do more to support at least some of the estimated 42 million friends and family members who are the primary caregivers of adults and children who have disabilities, are recovering from surgeries and illnesses or are coping with Alzheimer's and other chronic diseases."
Join Us: Rare Disease Capitol Hill Briefings
House Briefing: 7:30 AM - 9:00 AM
Senate Briefing: 9:00 AM - 10:30 AM
The National Alliance for Caregiving, in collaboration with Global Genes, invites you to attend policy briefings on the recently released research study, Rare Disease Caregiving in America. This important new study captures the experiences of more than 1,400 family caregivers of children and adults with a rare disease, condition, or disorder across 400 different diseases.
The briefing will explore policy recommendations and will highlight the unique challenges facing rare disease caregivers across the United States.
Learn more and register:
House Briefing: https://raredisease_house.eventbrite.com
Senate Briefing: https://raredisease_senate.eventbrite.com
State and Local Coalition Updates
Hawaii Family Caregiver Coalition
Earlier this year, the Hawaii Family Caregiver Coalition published Aging and Disability Issues 2018: A Guide for Hawaii's Legislators, Organizations, & Citizens. The report provides an overview of the current political context, significant programs of senior care, and current legislative proposals for the 2018 Session. The report was accompanied by visits of teams of family caregivers and advocates to the offices of state legislators. Read the report HERE.
Washington State Department of Social and Health Services
The 25th annual Washington State, Giving Care Taking Care Conference will take place on June 4, 2018. It is designed for family and community caregivers and offers practical, up-to-date resources and information to help individuals in their caregiving responsibilities. Dynamic speakers from a variety of backgrounds including health care, rehabilitation, social work, and law will share their expertise and knowledge in 20 sessions offered throughout the day. Learn more HERE.
Caregiving Reports and Resources
Report to the National Advisory Council on Alzheimer's Research, Care, and Services
This report to the Advisory Council on Alzheimer's Research, Care and Services presents the results of the first National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers (the Summit), held on the NIH campus in October 2017. This Summit was intended to set national research recommendations that reflect critical scientific priorities for research on care and services for persons with dementia and their families. Read the report HERE.
Dementia, Caregiving, and Transportation Toolkit
The National Aging and Disability Transportation Center, co-administered by n4a and Easterseals, has released Dementia, Caregiving and Transportation Toolkit, a new resource designed to provide caregivers with information and strategies to approach the coordination of transportation for meeting the everyday needs of older adults with dementia. View the full toolkit HERE.
Caregiving Events and Webinars
Women's Health Empowerment Summit
May 16, 2018 | Washington, DC
At this event hosted by the Coalition for Women's Health Equity, join policymakers, thought leaders, and fellow women's health champions as they identify strategic opportunities in the current legislative landscape and align mobilization and advocacy efforts to advance women's health equity. Learn more and register HERE.
Alzheimer's Association Advocacy Forum
June 17-19, 2018 | Washington, DC
The Alzheimer's Association AIM Advocacy Forum is the nation's premier Alzheimer's disease advocacy event. Join more than 1,000 advocates in Washington, D.C. to advocate for research, care, and support services. The Advocacy Forum is where you need to be to continue playing a crucial role in the fight against the disease. Learn more and register HERE.
The Millennial Perspective: An Intergenerational Discussion on Retirement Solutions
June 20, 2018 | Washington, DC
This annual Women's Institute for a Secure Retirement (WISER) forum features the iOme Challenge winning team of college students who will discuss their advisory paper in response to this year's Challenge question. A keynote speaker, panels of experts and congressional staff leaders will also discuss current issues and legislative proposals. Learn more and register HERE.
Healthy Aging Summit
July 16-17, 2018 | Washington, DC
The 2018 Healthy Aging Summit will explore ways to keep Americans healthy as they transition into older adulthood and maximize the health of all older adults. The Summit will focus on prevention strategies that encourage healthy lifestyles, planning for aging, and improving the use of preventive services. Learn more and register HERE.
n4a Annual Conference and Tradeshow
July 28-August 1, 2018 | Chicago, IL
The n4a Annual Conference & Tradeshow is the largest and most prestigious gathering of local aging leaders and professionals in the United States. More than 1,000 Aging Network professionals, as well as nationally renowned decision-makers and experts, participate in the Conference because they know that the issues and programs they care about most will be showcased. Learn more and register HERE.
Global Genes RARE Patient Advocacy Summit
October 3-4, 2018 | Irvine, CAThe RARE Patient Advocacy Summit is the can't-miss event of the year for rare disease stakeholders. The Summit is the largest gathering of rare disease patients, advocates, and thought leaders worldwide. Take advantage of this opportunity to connect and learn from more than 200 experts in rare disease leading 100 educational sessions. Learn more and register HERE.
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National Alliance for Caregiving
STAY CONNECTED:
National Alliance for Caregiving
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