This Week in Caregiving
Monday, April 23, 2018 WISER Founder to Receive PSCA Lifetime Achievement Award
Pensions and Investments | April 16, 2018
"Cindy Hounsell, president and founder of the Women's Institute for a Secure Retirement, will be presented with the Plan Sponsor Council of America's lifetime achievement award at the council's annual conference...in addition to her role at WISER, Ms. Hounsell currently serves on the National Alliance for Caregiving board."
Imaginative Caregiving for the Cancer Patient
The New York Times | April 19, 2018
"Bob and Linda Carey, shouldering her disease together, have used profits from his pictures to help women with the cost of breast cancer treatments, in the process proving that photography can become a form of caregiving."
Serving as Caregiver Takes Toll as You Age
Kiplinger | April 17, 2018
"Caregivers also should look to associations that focus on their loved one's medical condition, says C. Grace Whiting, president of the National Alliance for Caregiving. These groups offer caregiver training, support groups and advice on how to address the needs of a person with a specific disease."
The Clinical Trial Is Open. The Elderly Need Not Apply.
The New York Times | April 13, 2018"For an 83-year-old, what are the risks and benefits of a surgical procedure, drug or medical device tested primarily on those in their 50s? When a drug trial excludes those who have several diseases and take other drugs, how do the results pertain to older adults - most of whom have several diseases and take other drugs?"
Projected Costs of Informal Caregiving: A Policy StatementThe American Heart Association | April 9, 2018"In a recent report, the American Heart Association estimated that medical costs and productivity losses of cardiovascular disease (CVD) are expected to grow from $555 billion in 2015 to $1.1 trillion in 2035. Although the burden is significant, the estimate does not include the costs of family, informal, or unpaid caregiving provided to patients with CVD. In this analysis, AHA estimated projections of costs of informal caregiving attributable to CVD for 2015 to 2035."
Survey - The Caregiver Factor
If you've taken on caregiving for a loved one in recent years and face the challenges of balancing the healthcare needs of your loved one with your own needs, we want to hear your views.
Rx4Good partnered with the National Alliance for Caregiving and more than 70 other organizations on this survey because of their keen interest in helping you, the caregiver, navigate medical and care decisions that affect you and your loved one.
Your insights will help lead to better support for caregivers in this important role. Thank you in advance for your participation!
Take the survey HERE.
Caregiving Resources
Carer-Related Research and Evidence Exchange Network (CAREN)
CAREN is an accessible resource for carer-related knowledge such as research evidence, practice, and policy. It was designed to be used by governments, carers, employers, practitioners, researchers, and policy makers. This carer database is maintained by the Open University in the United Kingdom. Learn more HERE.
Ten Questions to Better Understand and Serve Your Complex Care Population
The SCAN Foundation's latest brief highlights 10 questions health plans and systems nationwide could consider using in their risk assessments to deliver more cost-effective, quality care. Read the brief HERE.
New Medicare Cards are Mailing
The Centers for Medicare and Medicaid Services has restocked their educational materials to help with your outreach efforts regarding new Medicare cards. To order free copies, log into the CMS Product Ordering website or request an account HERE.
Caregiving Policy Updates
Paid Family Leave Insurance Bill Advances to Connecticut House
"Legislation creating a paid family and medical leave insurance program in Connecticut has narrowly cleared a key vote. The General Assembly's Finance Revenue and Bonding Committee voted 26-25 Tuesday to advance the legislation to the House. The vote came after the committee defeated a similar bill by one vote." Read more HERE.
Caregiving Events and Webinars
RARE Patient Advocacy Symposium
May 19, 2018 | Philadelphia, PA
Global Genes and the University of Pennsylvania Orphan Disease Center (ODC) have announced the third annual Patient Symposium, in conjunction with UPenn's Million Dollar Bike Ride (MDBR). The Symposium has been developed for patient advocates to learn, connect and be inspired. Learn more and register HERE.
Mental Health America's 2018 Annual Conference: Fit for the Future
June 14-16, 2018 | Washington, DC
When it comes to mental health, is the United States languishing in the past, or are we fit for the future? MHA's 2018 Annual Conference will tackle this very question. The Fit for the Future theme will explore what we can do personally as individuals to keep ourselves healthy in the 21st Century. Learn more and register HERE.
Alzheimer's Association Advocacy Forum
June 17-19, 2018 | Washington, DC
The Alzheimer's Association AIM Advocacy Forum is the nation's premier Alzheimer's disease advocacy event. Join more than 1,000 advocates in Washington, D.C. to advocate for research, care, and support services. The Advocacy Forum is where you need to be to continue playing a crucial role in the fight against the disease. Learn more and register HERE.
Healthy Aging Summit
July 16-17, 2018 | Washington, DC
The 2018 Healthy Aging Summit will explore ways to keep Americans healthy as they transition into older adulthood and maximize the health of all older adults. The Summit will focus on prevention strategies that encourage healthy lifestyles, planning for aging, and improving the use of preventive services. Learn more and register HERE.
n4a Annual Conference and Tradeshow
July 28-August 1, 2018 | Chicago, IL
The n4a Annual Conference & Tradeshow is the largest and most prestigious gathering of local aging leaders and professionals in the United States. More than 1,000 Aging Network professionals, as well as nationally renowned decision-makers and experts, participate in the Conference because they know that the issues and programs they care about most will be showcased. Learn more and register HERE.
Global Genes RARE Patient Advocacy Summit
October 3-4, 2018 | Washington, DC
The RARE Patient Advocacy Summit is the can't-miss event of the year for rare disease stakeholders. The Summit is the largest gathering of rare disease patients, advocates, and thought leaders worldwide. Take advantage of this opportunity to connect and learn from more than 200 experts in rare disease leading 100 educational sessions. Learn more and register HERE.
Send your caregiving news and events to
The National Alliance for Caregiving
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