An Ex-Husband Moves Back In - For Cancer Care
The Wall Street Journal | August 19, 2018
"'He's my children's father' says a divorced woman, explaining why she is helping care for her ill ex-husband...Chad Burnheimer and Holly Platt, both in their 40s, had been divorced for eight years when he was diagnosed with brain cancer. At that point, Ms. Platt became his caregiver, taking him to the doctor, monitoring his medicine and joining him at support groups. As families in the U.S. become smaller and more far-flung, new caregivers emerge, including ex-spouses."
Commentary: The Great Caregiving Comeback
U.S. News and World Report | August 15, 2018
"Still, there is one trend-borne of a gradual shift in public perception but grounded in economics-that underscores the potential leverage of family caregivers: the rise in multigenerational households. According to a 2016 Pew Research survey, one fifth of U.S. households are now multigenerational. Many of these households include an elder being cared for by children and grandchildren, signaling a shift from the way families handle long-term and end-of-life care."
When Will the U.S. Finally Act Boldly on Paid Family Leave?
Harvard Business Review | August 13, 2018
"But one proposal - the Family and Medical Insurance Leave (FAMILY) Act - would be a major step forward. It would create a new office within the Social Security Administration to run a paid leave program funded by a new payroll tax. It would cover all family-related caregiving for up to 12 weeks, so almost all workers contributing to the program could eventually benefit from it. Today, more than 43 million Americans provide unpaid caregiving - often to the detriment of their household finances."
Following a Couple from Diagnosis to the Final Stages of Alzheimer's
CBS News | August 13, 2018
"Mike and Carol Daly have been married for 54 years. Like more than five million American families, they're dealing with dementia. Carol has been suffering from Alzheimer's, the main type of dementia. What makes this story so unusual, as we first reported in April, is that almost every year for the past ten years we've interviewed Mike and Carol as Alzheimer's took over her brain. Even though this is intensely personal, they wanted all of us to see the devastating impact of Alzheimer's, on each of them, over a decade."
The Wrong Way to Do Paid Family Leave
The New York Times | August 12, 2018
"There's a better way to structure paid family leave: Instead of having parents draw on existing Social Security benefits, workers and employers could pay a tiny new tax alongside what they already pay into Social Security. This would create a fund for when they need leave to care for a new child, deal with a serious illness, or care for a sick or disabled family member. It's the strongest way to gird families against 'the social insecurity of our time.'"
It Looks Like It's Not Just Crushing Student Loans Holding Millennials Back Anymore - It's Also Their Aging Parents
Business Insider | August 9, 2018
"Despite earning less, millennials are spending more than older caregivers, and they're doing it during significant life milestones. Scott Williams of the global initiative Embracing Carers told Ansberry that millennials spend 27% more of their incomes on caregiving than other generations in the same situation, and that one-third of millennial caregivers who have jobs earn less than $30,000 on average."
Policy Updates
Law Requiring Dementia Training for Healthcare Professionals Is UnprecedentedHealthcare professionals who treat adults in Massachusetts will be required to undergo training related to Alzheimer's disease under a new law signed last week by Gov. Charlie Baker. The Mass Alzheimer's and Dementia Act addresses what the Alzheimer's Association calls "the most under-recognized threat to public health in the 21st century," costing the country $277 billion annually in Medicare, Medicaid, caregiving and other expenses. The act requires physicians, physician assistants and registered and practical nurses who treat adults to undergo one-time training in diagnosing Alzheimer's disease and treating and caring for people with dementia before they can obtain or renew their licenses. Learn more HERE.
New Research
Research Brief: Rural Residents Lack Workplace Supports to Juggle Work and CaregivingA new University of Minnesota School of Public Health study shows that caregiving could be particularly difficult for informal caregivers in rural areas, who often lack the workplace flexibility and support they need to juggle their many responsibilities. Assistant Professor Carrie Henning-Smith analyzed survey responses from 635 people living in rural and urban communities across the country who both work and care for a loved one. Henning-Smith is continuing her research by looking at rural-urban differences in support programs that caregivers prefer and use. Learn more about her findings and suggested policy changes HERE.
New Research Suggests Men Take Care of Their Spouses Just as Well as Women
A recent study published in Journals of Gerontology, Series B finds that men respond to their spouse's illness just as much as women do and as a result are better caregivers in later life than previous research suggests. Using data from the German Socio-Economic Panel Study, the research carried out by Dr. Langner of Oxford University and Professor Frank Furstenberg of the University of Pennsylvania, focused on 538 couples in Germany, where one of them had developed the need for spousal care, between 2001-2015, and looked at how caregivers adjusted their hours in response to the new care need. Learn more about the findings HERE.
Events and Opportunities
Family Caregiver Alliance: Preventing Burnout for the Dementia Caregiver WebinarAugust 29, 2018 | 2:00-3:00PM ET | Online
The stress of caregiving, especially without respite or a predictable conclusion, often leads to health problems, including depression and cardiovascular disease. Quality of life and the ability to care for a family member or friend can be at risk. Preventing Burnout for the Dementia Caregiver will help caregivers understand the importance of self-care and how it can foster positive caregiving experiences without burnout. During this webinar, strategies for guilt-free, self-care will be discussed. Learn more and register HERE.
Call for Nominations: American Society on Aging Board of Directors
Deadline: August 31, 2018 | Online
The American Society on Aging (ASA) is accepting nominations for their Board of Directors. Current members of ASA are eligible to submit an application to be nominated to ASA's Board of Directors. Positions are open for two-year terms, which will begin in April 2019. ASA is dedicated to fostering a vibrant membership community of professionals in the field of aging founded upon its commitment to diversity and inclusion. To nominate yourself or another ASA member, please click HERE. Nominees must also send a resume/CV and biosketch to info@asaging.org with the subject line "Resume for Board of Directors Application.
Call for Nominations: National Health Council Board of Directors
Deadline: September 12, 2018 | Online
The National Health Council (NHC) is now accepting nominations for its Board of Directors for 2019. Currently, there are six Board member positions open for the three-year term of 2019-2021. The term of office for a Board member position is three years with the possibility of a second term. The Board meets quarterly in Washington, DC. NHC greatly appreciates your help in identifying strong candidates who can provide decisive leadership as they address complex systemic health issues affecting all people with chronic conditions and their family caregivers. To nominate yourself or someone else, please click HERE.
Yale School of Public Health: Family Caregiving as a Public Health Issue
September 20, 2018 | 6:30PM-8:30PM ET | New York, NY
Please join the Yale School of Public Health & the Yale Alumni Nonprofit Alliance as they explore the challenges of family caregiving through one family's story. Valerie Martinez (Class of '99, SOM) will share her journey as she grapples with the emerging needs of two very independent parents with growing healthcare needs. A panel of experts will reflect upon Valerie's experiences, providing insights from the clinical, research, and advocacy perspectives. Sten H. Vermund, MD, PhD, Dean of the Yale School of Public Health, will open this forum, inspired by the report, "From Insight to Advocacy: Family Caregiving as a Public Health Issue." Buy tickets HERE.
Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards
Deadline: October 12, 2018 | Online
Family Caregiver Alliance - with The Rosalinde and Arthur Gilbert Foundation - are pleased to announce the Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards for 2018 are now open and they are accepting applications. There are three $20,000 awards in the following categories: (1) Creative Expression; (2) Diverse/Multicultural Communities; and (3) Public Policy. Learn more and apply HERE.
BIO Patient and Health Advocacy Summit
October 25-26, 2018 | Washington, DC
Now in its seventh year, this event convenes patient advocacy organizations, academia, regulators, the biotechnology industry, and other healthcare stakeholders for two days of robust programming to discuss timely policy issues and share best practices. Learn from and network with key stakeholders in the healthcare ecosystem. Learn more and register HERE.
Caregiving.com's National Caregiving Conference
November 8-11, 2018 | Chicago, IL and Online
Caregiving.com's annual conference brings together family caregivers and former family caregivers from across the country. This year's conference theme, Our Best Selves, encourages us to look at how we do our best during an experience that feels like the worst. Their conference features presentations and panel discussions from family caregivers and former family caregivers. Learn more and registerHERE.
Send your caregiving news and events to
info@caregiving.org.
National Alliance for Caregiving www.caregiving.org
STAY CONNECTED:
National Alliance for Caregiving
4720 Montgomery Lane, Suite 205
Bethesda, Maryland 20814, United States
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