Saturday, June 4, 2016

"AGM Reminder and Extra News" Down's Heart Group in Dunstable, England LU6 2ZT [Great Britain], United Kingdom "DHG latest news and AGM reminder"

"AGM Reminder and Extra News" Down's Heart Group in Dunstable, England LU6 2ZT [Great Britain], United Kingdom "DHG latest news and AGM reminder"
Please find below some important news that missed the deadline for Newsletter 58.
Twycross Zoo trip and AGM - Saturday 18th June 2016 from 10am.
This is open to any family with a member with Down's Syndrome and professionals with an interest in our work. The AGM will only last for a short time and delegates will be able to then visit the zoo for the rest of the day for the bargain price of £8. Zoo tickets must be prepurchased and we need to know numbers for refreshments at the AGM. Please follow the link to book in:
http://www.dhg.org.uk/conference.aspx
We think it will be a great opportunity for families to meet up and have a lovely day out. You can also find out more about DHG and what the future holds for us. We very much look forward to meeting you!

Special Facial Characteristics Voucher
Thanks to a two year campaign by Simon Berry, an Optometrist specialising in children's eye care, Special Facial Characteristics Vouchers towards the cost of glasses frames are now available for all children with Down's Syndrome, whether they attend hospital or local opticians, wherever they live in the UK.
Children with Down's Syndrome often have flatter, smaller noses than their peers or may need to wear a hearing aid as well as glasses making suitable frames more difficult and expensive to find. Specialist frames can mean a better fit, fewer repairs and better quality of vision, which all make a positive contribution to a child’s quality of life.
Simon's campaign, which was backed by DHG, DSA, Mencap, SeeAbility, other organisations and MPs, has persuaded the NHS to change the regulations on funding, giving parents wider access to financial help towards buying specially made glasses for their children.
http://tinyurl.com/hugmay3

Parents Conference - Exercise in Congenital Heart Disease
Free conference at Childrens' Health and Exercise Research Centre (CHERC)
St Luke's Campus,
University of Exeter. EX1 2LU
This half day conference for parents will discuss exercise in CHD, what to be aware of and the importance of exercise. Dr Graham Stuart (Consultant Cardiologist at Bristol Children's Hospital) and Prof. Craig Williams (Director of CHERC at the University of Exeter) will be hosting the event. Please contact Lucy Gowing to reserve your place, ask any questions and also let her know of any dietary requirements, as lunch is included.
Tel: 07786150228 Lucy Gowing (HRUK)
Email:exercise@heartresearch.org.uk

Workforce development for people with learning disabilities: the perspective from people with learning disabilities
The Foundation for People with Learning Disabilities has been commissioned by Health Education England – Kent, Surrey, Sussex to consult with people with learning disabilities to find out what they would like their workforce to know in order to support them. The project is taking place from April to August 2016.
We will hold a series of workshops and one to one interviews with people with learning disabilities over the age of 16 across all three counties. We need to gather the views of family and support workers too, especially if they are supporting a person with a high level of support needs.
We are able to offer participants a small token of appreciation in the form of a voucher for their time and expertise, so if you know of anyone who would like to take part in either the workshops or completing the questionnaire please get in touch with, me, Jill Davies at:
jdavies@fpld.org.uk
020 7803 1141
Our mailing address is:
info@dhg.org.uk
Down's Heart Group
PO Box 4260
Dunstable, England LU6 2ZT [Great Britain], United Kingdom
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