Monday, June 25, 2018
Cause Celeb: Marcia Gay Harden on Being an Alzheimer's Caregiver
The Washington Post | June 20, 2018
"At a Senate Aging Committee [hearing]...Sen. Susan Collins (R-Maine) sported a boxy suit of purple, the color advocates have adopted. Collins said the ensemble was 15 years old, but she had sworn she would wear it until there were better treatments. 'It's woefully out of style, and I'm really sick of it...so let's get on with the job!"
Should You Uproot Your Life to Be Closer to Your Aging Parents?
Market Watch | June 20, 2018
"It is a question faced by many boomers and Gen Xers with aging parents who live far away: whether to uproot their own life to care for a parent or try to manage things from a distance. Neither choice is easy."
A Possible Solution to the Caregiver Dilemma
Minneapolis Star Tribune | June 20, 2018
"If we let people sacrifice their potential earnings and savings to help their loved ones, there will be a future societal cost. Instead, we can support them with enhanced social programs or tax incentives."
Birdwatching with My Mother: Caregiving, Dementia and Us
Salon | June 19, 2018
"I feel guilty if I don't visit her every day, all day, guilty every moment I'm not with my mother. Worrying all the time that she'll fall and not be able to call me, not remember the personal alarm pendant around her neck. Worry she'll be lonely. For a long time she won't let me hire anyone to help."
Aging in Place vs. Assisted Living...It's Complicated
CNBC | June 18, 2018
"Where do you want to live when you're retired - in your own home or in an assisted-living facility? Although the answer might seem obvious, that question is one that everybody should ask themselves, their spouse and their parents."
Caregiving Resources
Taking Care of Caregivers
A newly released white paper from Cariloop Caregiver Support Platform, "Taking Care of Caregivers: Why Corporate America Should Support Employees Who Give Their Hearts and Souls to Those in Need,"examines the unique set of challenges caregiving poses for employees and employers alike. The paper highlights some of the programs and policies companies have created in response to these challenges. Read the paper HERE.
Supported Decision-Making Resource Library
Supported Decision-Making (SDM) is an alternative model where people with disabilities keep their rights and their decision-making capacity. Instead of having a caregiver make choices for them, people with disabilities have supporters who help them make their own choices. The ACLU has a full resource library on SDM including videos, FAQs, and sample SDM agreements. Explore the library HERE.
Daughters in the Workplace
Home Instead developed the Daughters in the Workplace public education program offering free resources to help working family caregivers feel empowered to talk to their employers about their needs, while also identifying caregiving support that may be available. This program also provides information to help employers understand what their employees want and need as caregivers. Learn more HERE.
Caregiving Research
Optimizing NIA's Eureka Prize Competition Topic
Navigating the US healthcare system can be challenging for people living with Alzheimer's disease (AD) and related dementias (ADRD) and caregivers. The National Institute on Aging (NIA) is planning a competition to spur innovation and improve care for people living with AD/ADRD. Visit NIA's IdeaScale Community before June 30th to submit your own ideas and browse current responses.
GSA Journal Open Call for Papers
GSA's online journal, Innovation in Aging, is currently accepting submissions for a special issue, "Translational Research on Caregiving to Improve Outcomes of Care Recipients and Caregivers," planned for the November 2019 issue. Abstract submissions are due August 1, 2018, and manuscript submissions will be due February 1, 2019. Learn more HERE.
Strategies to Advance Policies Supporting Family Caregivers
Family caregivers are the cornerstone of the long-term supports and services infrastructure in the U.S., yet often contend with many challenges. By presenting specific strategic approaches to advance caregiving policies, researchers have identified tools to address the growing gap between caregiver needs and policy responses. This study was made possible with support from AARP California and the Archstone Foundation. Read the study HERE.
Caregiving Events and Webinars
Webinar: Dementia Care Training Recommendations and Resources
June 26, 2018 | 12:00-1:00PM ET | Online
Please join the Eldercare Workforce Alliance as they discuss the latest recommendations and resources to provide high quality care to people with dementia with an expert panel. The panel will discuss various resources for the workforce, patients, and family caregivers. Learn more and register HERE.
Webinar: Caregivers in the Middle
June 27, 2018 | 8:00-9:00AM ET | Online
Family caregivers often balance the challenging role of parenting children while providing care to a family member living with Alzheimer's or dementia. This webinar hosted by the Family Caregiver Alliance will provide caregivers with strategies for understanding the perspectives of children and discuss ways of promoting the well-being of the entire family. Learn more and register HERE.
Webinar: The Family Caregiver's Stress
June 28, 2018 | 12:00-12:45PM ET | Online
To raise awareness of caregiving stress, Caregiving.com asked family caregivers to rate their stress level and indicate the source(s) of their stress. In this 45-minute webinar, Denise M. Brown, founder of CareGiving.com, will share the current results of the ongoing survey and share thoughts about what's needed to minimize the stress. Learn more and register HERE.
n4a Annual Conference and Tradeshow
July 28-August 1, 2018 | Chicago, IL
The n4a Annual Conference & Tradeshow is the largest and most prestigious gathering of local aging leaders and professionals in the United States. More than 1,000 Aging Network professionals, as well as nationally renowned decision-makers and experts, participate in the Conference because they know that the issues and programs they care about most will be showcased. Learn more and register HERE.
Global Genes RARE Patient Advocacy Summit
October 3-4, 2018 | Irvine, CA
The RARE Patient Advocacy Summit is the can't-miss event of the year for rare disease stakeholders. The Summit is the largest gathering of rare disease patients, advocates, and thought leaders worldwide. Take advantage of this opportunity to connect and learn from more than 200 experts in rare disease leading 100 educational sessions. Learn more and register HERE.
National Caregivers Conference
October 11, 2018 | Woodbridge, NJ
The National Caregivers Conference, "Health, Technology, and the Family Caregiver," will bring innovative solutions to the increasing demand on family caregivers across the nation while showcasing projects that use technology to improve health and quality of life. This year's conference will feature the nation's first Caregiver Shark Tank. Learn more and register HERE.
Send your caregiving news and events to
National Alliance for Caregiving www.caregiving.org
STAY CONNECTED:
National Alliance for Caregiving
***
No comments:
Post a Comment