This Week in Caregiving
Monday, June 4, 2018
Good Day LA/FOX 11 | May 2018
Last month, the National Alliance for Caregiving hosted two Capitol Hill briefings on our recent report,Rare Disease Caregiving in America. One of our patient advocates who spoke at the briefings, Maria Quiban, is a weather anchor on Good Day LA/FOX 11 Morning News. The station featured a segment on her trip to DC. Watch it HERE (skip to 10:15:55).
Caregiving Isn't a Solo Sport
NIH MedlinePlus | May 2018
"Leeza Gibbons is a leading TV talk show host, entertainment reporter, and best-selling author, but she has another role: caregiver. Gibbons cared for both her mother and father during serious illnesses. She shares advice for other family caregivers and explains how research and resources - like those at NIH - can help."
Financial Planning for the Special Needs Community
Wealth Management | May 30, 2018
"More than 57 million individuals across the United States are living with a physical or cognitive disability. With limited assistance from government programs, this group - along with their caregivers - has many unique considerations when it comes to creating a financial strategy for retirement."
How to Run a Family Caregiving Meeting
AARP | May 25, 2018
"More than any other event during the caregiving years, the family meeting has the potential to bring loved ones together as a strongly bonded team. How can you hold family meetings that foster greater commitment (not dissension) and more coordinated (not divergent) plans? Here are some ideas."
Have a Plan in Case Parents Need Care
Chicago Tribune | May 25, 2018
"How can people manage the cost of caregiving? Use all of the resources available. I used our employee-assistance program at work to help find caregivers and other resources. A geriatric care manager can help determine where care should be received based on physical needs, financial resources and personal preferences."
Caregiving Resources
UsAgainstAlzheimer's: The A-List
UsAgainstAlzheimer's is excited to launch the A-LIST, an online community of patients and caregivers as a part of AD PACE, a ground breaking patient/caregiver-led collaboration to deliver new insights to researchers, regulators, and payers. Watch the launch video HERE.
Navigating Long-Term Care Insurance
Long-Term Care Insurance (LTCI) is one of many different ways individuals can help pay for their long-term care needs later in life. Often a LTCI policy is purchased years before the individual needs to make a claim on the policy or use the policy benefits. To help individuals navigate their LTCI policies better, Home Instead, Inc. has developed an educational guide. Read the guide HERE.
Caregiving Research
The State of Caregiving for Alzheimer's and Related Dementia 2018A new report from Healthline Media examines how Alzheimer's has impacted the lives of caregivers. They conducted a survey of nearly 400 active caregivers representing millennials, Generation X, and baby boomers and interviewed a dynamic group of medical and care experts to understand the constraints, needs, and unspoken truths of caring for someone with Alzheimer's disease. Read the report HERE.
Working Family Caregiver Survey
Caregiving.com is conducting a survey to better understand the impact of caregiving stress in the work place. Current or former family caregivers who are or have been employed full-or part-time while helping or caring for a family member or friend are invited to participate. Take the survey HERE.
Caregiving Events and Webinars
National Patient Safety Foundation Webcast
June 14, 2018 | 1:00-2:00 PM EST | Online
Care in the home setting is expanding. Despite this rise, safety in the home setting isn't as well understood as in other settings. Join expert panelists for this complimentary webcast as they discuss challenges, opportunities, and recommendations for advancing patient safety. Learn more and register HERE.
The Millennial Perspective: An Intergenerational Discussion on Retirement Solutions
June 20, 2018 | Washington, DC
This annual Women's Institute for a Secure Retirement (WISER) forum features the iOme Challenge winning team of college students who will discuss their advisory paper in response to this year's Challenge question. A keynote speaker, panels of experts and congressional staff leaders will also discuss current issues and legislative proposals. Learn more and register HERE.
LTQA Forum: Connecting LTSS and Health Care Information
June 27, 2018 | Washington, DC
This forum will bring together payers, long-term services and supports (LTSS) providers, advocates, and consumers from Long-Term Quality Alliance (LTQA)'s membership and its sphere of interested and connected professionals to understand and appreciate the transformative power of recent advances in the state of data interoperability. Learn more and register HERE.
National Alliance on Mental Illness Convention
June 27-30, 2018 | New Orleans, LA
The National Alliance on Mental Illness (NAMI) National Convention is one of the largest annual gatherings of mental health advocates in the nation. The Convention connects people affected by mental illness who are looking for resources, research and support. Attendees include individuals with mental illness, family members, caregivers, advocates, policymakers, educators, researchers, clinicians and press. Learn more and register HERE.
n4a Annual Conference and Tradeshow
July 28-August 1, 2018 | Chicago, IL
The n4a Annual Conference & Tradeshow is the largest and most prestigious gathering of local aging leaders and professionals in the United States. More than 1,000 Aging Network professionals, as well as nationally renowned decision-makers and experts, participate in the Conference because they know that the issues and programs they care about most will be showcased. Learn more and register HERE.
Global Genes RARE Patient Advocacy Summit
October 3-4, 2018 | Irvine, CA
The RARE Patient Advocacy Summit is the can't-miss event of the year for rare disease stakeholders. The Summit is the largest gathering of rare disease patients, advocates, and thought leaders worldwide. Take advantage of this opportunity to connect and learn from more than 200 experts in rare disease leading 100 educational sessions. Learn more and register HERE.
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