NAC News: Cancer Caregiving, Caregiving Month & More from National Alliance for Caregiving in Bethesda, Maryland, United States for Thursday, 15 September 2016The Caregiving Exchange
Summer 2016
STAY CONNECTED
From the President's Desk If you haven't seen it yet, the breaking news this week is the new report from the National Academies of Sciences, Engineering, and Medicine, "Families Caring for an Aging America." The report reflects a national consensus building process to identify the challenges facing family caregivers of older adults, and recommends a national plan for caregivers.
This summer has been an exciting time for caregiving. The Alliance released the Cancer Caregiving in the U.S. study, with the National Cancer Institute and Cancer Support Community. If you missed it, check out the webinar featuring an overview of the report and a caregiver perspective. We also had the opportunity to brief Vice President Biden's Moonshot Initiative team on the report, specifically on the demographics of cancer caregivers and the need for end-of-life decision-making assistance.
June also gave us the opportunity to celebrate the Olmstead Decision's 17th anniversary. The Supreme Court's 1999 decision advanced the cause of people and families who manage disabilities, finding that people a right to receive home- and community-based services.
As we approach the fall, we're excited to announce three new projects. In October, we'll be hosting a series of webinars on falls prevention with the National Council on Aging and launching #HealthyFamilies #StickTogether - an adult immunization drive and social media campaign in collaboration withPfizer, CVS Health, and Walgreens.
In late October, we're launching #TalkBrainHealth, a social media campaign and toolkit encouraging conversation among families about brain health. We're working in partnership with the Alzheimer's Foundation of America to release the kit just in time for National Family Caregivers month. Check out the Caregiving Advocates Corner for more on these upcoming campaigns.
Finally, we're rounding out the year with a new white paper on Dementia Caregiving in the U.S., in partnership with the Alzheimer's Association,Home Instead, and Eli Lilly.
As always, we appreciate your support as we continue to look for new and better ways to support America's caregivers.
Best,
Gail Gibson Hunt
President and CEO
In This Issue
The Alliance would like to welcome Philips Healthcare, PWR, the National Stroke Association, and the National Asian Pacific Center on Aging to our coalition. In addition, we are honored to have Stefani Benefield of Humana and Lisa McGuire of the CDC to join the Alliance's Board of Directors.
New Research, Reports & Publications
The National Academy of Sciences, Engineering and Medicine released a long-awaited study on family caregivers of older adults, examining the caregivers needs, demographics, and more. See the study here.
Health Affairs analyzed the role of family caregivers in healthcare delivery in the September 9 blog post, Embracing The Role Of Family Caregivers In The U.S. Health System.
The Journal of Aging and Social Policy reviewed the effect on caring of adult offspring who are caregivers of different ethnic backgrounds finding that "culture and ethnicity affect health evaluations and caregiving decision making." Learn more here.
The Journal of Applied Gerontology released an article on the changing caregiving landscape. Read it here.
The Alzheimer's and Dementia Journal completed a study on the factors related to the costs of dementia care. See abstract here.
Researchers examined trends in caregiving for functionally impaired older adults in a study featured in the Journal of the American Medical Association. Check it out here.Back t
Member Spotlight: "Caregiving + Tech = Now"
Parys Grigsby, Special Assistant to the CEO
As an innovator in healthcare, Philips is leading a national conversation on technology and family caregiving. The Alliance is honored to be a part of the Aging Well Hub, a collaborative research and development initiative aimed at delivering innovative connected solutions and services for aging well across the continuum of care. We spoke with the Philips Long Term and Post-Acute Care and Aging Well Solutions team to better understand how their work fits into the needs of caregivers.
Philips is generally known for their work in technology. How do caregiving and technology work together? And how does caregiving fit into Philips' overall mission?
Our products and technologies support people across the lifespan, from people who are in their early lives such as babies, new mothers, and then all the way through to technologies that are used in hospitals for acute care, and everything in between. The Home Monitoring organization in particular focuses on seniors living well across the spectrum of care. Caregivers are a key part of that healthcare spectrum and are key to ensuring that people live as healthy as possible.
To read more, click here.
Legislation & Advocacy Updates
Michael Reese Wittke, Director of Advocacy
ABLE Savings Accounts
Passage of the Achieving a Better Life Experience (ABLE) Act of 2013 (S 313/HR 647) brought with it the ABLE savings account - a savings account for individuals with disabilities who qualify for Federal programs such as SSI/SSDI. The savings account allows eligible beneficiaries to save money without losing eligibility for public benefits that require meeting a means test. While anyone can make deposits in the ABLE savings accounts, only eligible enrollees can access funds. Ohio and Tennessee rolled out the accounts in June; Nebraska, Florida, North Carolina and Utah are soon to follow. The minimum annual contribution is $50 while maximum annual contribution is $14,000. On average, $1200 per year is deposited into the account.
Independence at Home Act [S. 3130]
Senators Ed Markey (D-MA), John Cornyn (R-TX), Michael Bennet (D-CO), and Rob Portman (R-OH) in July introduced the Independence at Home Act of 2016. The legislation would expand and scale the Independence at Home (IAH) demonstration program. IAH requires primary care providers to provide care in the home setting, 24/7, and to meet specific quality measures, including providing advance care planning.
Kevin and Avonte's Law [S. 2614]
[H.R. 4919]
The U.S. Senate in July passed S.2614 with unanimous consent. This bill aims to safeguard individuals who have autism or other conditions that may cause them to wander away from caregivers. The legislation is named in honor of two boys with autism who perished after wandering. The bill would reauthorize the expired Missing Alzheimer's Disease Patient Alert Program and include new provisions to support people with autism. The companion bill H.R. 4919 still awaits passage in the House.
ACA Updates in the News
Aetna's exit deals blow to Obamacare, patients
Obamacare Appears to Be Making People Healthier
In La. and Ky. Shifts on Medicaid Expansion, a Reminder of Governor's Power in Health Care
Caregiving Advocates Corner
#TalkBrainHealth
The National Alliance for Caregiving, in partnership with the Alzheimer's Foundation of America, will release a conversation kit for family caregivers of loved ones with mild memory impairments. The kit will facilitate the conversation between families and encourage continued conversation about brain health on social media. Caregiving coalitions are invite to apply for $500 stipends (for up to 10 coalitions) who participate in the social media campaign demonstrating ways in which family caregivers can talk to their loved ones about brain health. The campaign will launch in late October through mid-December 2016. Submit your coalition's proposal here.
Healthy Families #StickTogether
The Alliance is launching a social media campaign in partnership with Pfizer, CVS Health, and Walgreens on adult immunizations, Healthy Families #StickTogether. This educational campaign will coincide with National Family Caregivers Month (November 2016) and focus on the importance of adult vaccinations for shingles, pneumonia, tetanus, and flu prevention. Caregiving coalitions will host educational sessions on adult immunization and encourage attendees to share what they learn at the drive on social media with the hashtags #healthyfamilies and #sticktogether.
Webinar for Military Caregivers - It Takes Courage After Fire
Navigating the Role of Caregiver
The Alliance is a proud partner of the Easter Seals Dixon Center and the Elizabeth Dole Foundation's work to help support military families. Join the free webinar onThursday, October 20th from 11am - 12pm noon (Pacific Time) to learn about the impact of caregiving on families, available resources, and self-care. To learn more,register here.
Resources on Elder Abuse
Elder abuse is increasing at alarming rates as our population ages and is vastly underreported. Family caregivers can play a role in protecting their loved ones from abuse. If you are looking for resources on this topic, the National Center on Elder Abuse (NCEA) is a federal resource center dedicated to the prevention of elder mistreatment. You can learn more at by calling 855-500-3537 or visit https://ncea.acl.gov.
Save the Date! March 21, 2017
The 11th Annual National Conference of Caregiver Advocates
Join us for the 11th Annual National Conference for Caregiver Advocates, which brings together coalitions, Area Agencies on Aging, Aging and Disability Resource Centers, and caregiving advocacy organizations. This year's topic, Is Family Caregiving the Next Public Health Crisis?, looks at caregiving from an often-overlooked public health perspective. Registration opens in October.
Upcoming Events in Caregiving, Aging, & Disability
2016 ARCH National Lifespan Respite Conference
September 20-22, 2016 | Denver, CO
The conference theme is Elevate Respite! The conference program is now available. Tracks for Lifespan Respite grantees and partners, government agencies, service providers, advocates, military families and veterans service providers, and family caregivers will feature over 30 concurrent sessions on respite best practices and innovative services, research, and policy. Check the conference website frequently for new information.
Rare Patient Advocacy Summit
September 22-24, 2016 | Huntington Beach, CA
The goal of the RARE Patient Advocacy Summit is for patients, caregivers, and advocates in the rare disease community to walk away equipped with actionable next steps. It is open to those who have been recently diagnosed, those who are are building a disease community, those thinking about funding early research, those actively engaged in developing a treatment, or those have been advocating in rare disease for decades. Learn more here.
2016 GSA Annual Scientific Meeting
November 16-20, 2016 | New Orleans, LA
GSA's Annual Scientific Meeting brings together 4,000 international experts and partners from academia, industry, government, and beyond to exchange information and to discuss the broader role of aging science. This meeting is the premier gathering of gerontologists from both the United States and around the world. Learn more and register here.
1st Annual National Caregiving Conference 2016
December 2-3, 2016 | Chicago, IL
The goal of the 1st Annual National Caregiving Conference is to connect caregivers with support and solutions, empower them with insights and information, and entertain them with engaging and enlightening presentations. It also aims to spark important conversations about what current and former family caregivers need in their communities, workplaces, and health care systems. Register here.
Aging in America 2017:
Annual Conference of the American Society on Aging
March 20-24, 2017 | Chicago
With hundreds of educational sessions, an exhibit hall featuring the latest products and services for older adults and those who serve them, and networking events each day, AiA17 is not to be missed! Register on October 3 here.
Don't miss our one day caregiving meeting at the Aging in America conference. More details to come in late 2016.
International Association of Gerontology and Geriatrics Conference
July 23-27, 2017 | San Fancisco, CA
Plan now to attend the largest, most significant worldwide conference on aging. Share in the latest science, research, training, technology, and policy development presented by experts from around the world. Discover all that's new, waiting for you in a single venue. Sign up to be notified of registration opening and other key dates.
If you would like the Alliance's President and CEO Gail Hunt to present on caregiving issues at your upcoming conference, please emailparys@caregiving.org.
STAY CONNECTED
National Alliance for Caregiving
President and CEO
In This Issue
- From the President's Desk
- New Research, Reports & Publications
- Member Spotlight: Philips
- Legislation & Advocacy Updates
- Caregiving Coalitions Corner
- Upcoming Events
The Alliance would like to welcome Philips Healthcare, PWR, the National Stroke Association, and the National Asian Pacific Center on Aging to our coalition. In addition, we are honored to have Stefani Benefield of Humana and Lisa McGuire of the CDC to join the Alliance's Board of Directors.
New Research, Reports & Publications
The National Academy of Sciences, Engineering and Medicine released a long-awaited study on family caregivers of older adults, examining the caregivers needs, demographics, and more. See the study here.
Health Affairs analyzed the role of family caregivers in healthcare delivery in the September 9 blog post, Embracing The Role Of Family Caregivers In The U.S. Health System.
The Journal of Aging and Social Policy reviewed the effect on caring of adult offspring who are caregivers of different ethnic backgrounds finding that "culture and ethnicity affect health evaluations and caregiving decision making." Learn more here.
The Journal of Applied Gerontology released an article on the changing caregiving landscape. Read it here.
The Alzheimer's and Dementia Journal completed a study on the factors related to the costs of dementia care. See abstract here.
Researchers examined trends in caregiving for functionally impaired older adults in a study featured in the Journal of the American Medical Association. Check it out here.Back t
Member Spotlight: "Caregiving + Tech = Now"
Parys Grigsby, Special Assistant to the CEO
As an innovator in healthcare, Philips is leading a national conversation on technology and family caregiving. The Alliance is honored to be a part of the Aging Well Hub, a collaborative research and development initiative aimed at delivering innovative connected solutions and services for aging well across the continuum of care. We spoke with the Philips Long Term and Post-Acute Care and Aging Well Solutions team to better understand how their work fits into the needs of caregivers.
Philips is generally known for their work in technology. How do caregiving and technology work together? And how does caregiving fit into Philips' overall mission?
Our products and technologies support people across the lifespan, from people who are in their early lives such as babies, new mothers, and then all the way through to technologies that are used in hospitals for acute care, and everything in between. The Home Monitoring organization in particular focuses on seniors living well across the spectrum of care. Caregivers are a key part of that healthcare spectrum and are key to ensuring that people live as healthy as possible.
To read more, click here.
Legislation & Advocacy Updates
Michael Reese Wittke, Director of Advocacy
ABLE Savings Accounts
Passage of the Achieving a Better Life Experience (ABLE) Act of 2013 (S 313/HR 647) brought with it the ABLE savings account - a savings account for individuals with disabilities who qualify for Federal programs such as SSI/SSDI. The savings account allows eligible beneficiaries to save money without losing eligibility for public benefits that require meeting a means test. While anyone can make deposits in the ABLE savings accounts, only eligible enrollees can access funds. Ohio and Tennessee rolled out the accounts in June; Nebraska, Florida, North Carolina and Utah are soon to follow. The minimum annual contribution is $50 while maximum annual contribution is $14,000. On average, $1200 per year is deposited into the account.
Independence at Home Act [S. 3130]
Senators Ed Markey (D-MA), John Cornyn (R-TX), Michael Bennet (D-CO), and Rob Portman (R-OH) in July introduced the Independence at Home Act of 2016. The legislation would expand and scale the Independence at Home (IAH) demonstration program. IAH requires primary care providers to provide care in the home setting, 24/7, and to meet specific quality measures, including providing advance care planning.
Kevin and Avonte's Law [S. 2614]
[H.R. 4919]
The U.S. Senate in July passed S.2614 with unanimous consent. This bill aims to safeguard individuals who have autism or other conditions that may cause them to wander away from caregivers. The legislation is named in honor of two boys with autism who perished after wandering. The bill would reauthorize the expired Missing Alzheimer's Disease Patient Alert Program and include new provisions to support people with autism. The companion bill H.R. 4919 still awaits passage in the House.
ACA Updates in the News
Aetna's exit deals blow to Obamacare, patients
Obamacare Appears to Be Making People Healthier
In La. and Ky. Shifts on Medicaid Expansion, a Reminder of Governor's Power in Health Care
Caregiving Advocates Corner
#TalkBrainHealth
The National Alliance for Caregiving, in partnership with the Alzheimer's Foundation of America, will release a conversation kit for family caregivers of loved ones with mild memory impairments. The kit will facilitate the conversation between families and encourage continued conversation about brain health on social media. Caregiving coalitions are invite to apply for $500 stipends (for up to 10 coalitions) who participate in the social media campaign demonstrating ways in which family caregivers can talk to their loved ones about brain health. The campaign will launch in late October through mid-December 2016. Submit your coalition's proposal here.
Healthy Families #StickTogether
The Alliance is launching a social media campaign in partnership with Pfizer, CVS Health, and Walgreens on adult immunizations, Healthy Families #StickTogether. This educational campaign will coincide with National Family Caregivers Month (November 2016) and focus on the importance of adult vaccinations for shingles, pneumonia, tetanus, and flu prevention. Caregiving coalitions will host educational sessions on adult immunization and encourage attendees to share what they learn at the drive on social media with the hashtags #healthyfamilies and #sticktogether.
Webinar for Military Caregivers - It Takes Courage After Fire
Navigating the Role of Caregiver
The Alliance is a proud partner of the Easter Seals Dixon Center and the Elizabeth Dole Foundation's work to help support military families. Join the free webinar onThursday, October 20th from 11am - 12pm noon (Pacific Time) to learn about the impact of caregiving on families, available resources, and self-care. To learn more,register here.
Resources on Elder Abuse
Elder abuse is increasing at alarming rates as our population ages and is vastly underreported. Family caregivers can play a role in protecting their loved ones from abuse. If you are looking for resources on this topic, the National Center on Elder Abuse (NCEA) is a federal resource center dedicated to the prevention of elder mistreatment. You can learn more at by calling 855-500-3537 or visit https://ncea.acl.gov.
Save the Date! March 21, 2017
The 11th Annual National Conference of Caregiver Advocates
Join us for the 11th Annual National Conference for Caregiver Advocates, which brings together coalitions, Area Agencies on Aging, Aging and Disability Resource Centers, and caregiving advocacy organizations. This year's topic, Is Family Caregiving the Next Public Health Crisis?, looks at caregiving from an often-overlooked public health perspective. Registration opens in October.
Upcoming Events in Caregiving, Aging, & Disability
2016 ARCH National Lifespan Respite Conference
September 20-22, 2016 | Denver, CO
The conference theme is Elevate Respite! The conference program is now available. Tracks for Lifespan Respite grantees and partners, government agencies, service providers, advocates, military families and veterans service providers, and family caregivers will feature over 30 concurrent sessions on respite best practices and innovative services, research, and policy. Check the conference website frequently for new information.
Rare Patient Advocacy Summit
September 22-24, 2016 | Huntington Beach, CA
The goal of the RARE Patient Advocacy Summit is for patients, caregivers, and advocates in the rare disease community to walk away equipped with actionable next steps. It is open to those who have been recently diagnosed, those who are are building a disease community, those thinking about funding early research, those actively engaged in developing a treatment, or those have been advocating in rare disease for decades. Learn more here.
2016 GSA Annual Scientific Meeting
November 16-20, 2016 | New Orleans, LA
GSA's Annual Scientific Meeting brings together 4,000 international experts and partners from academia, industry, government, and beyond to exchange information and to discuss the broader role of aging science. This meeting is the premier gathering of gerontologists from both the United States and around the world. Learn more and register here.
1st Annual National Caregiving Conference 2016
December 2-3, 2016 | Chicago, IL
The goal of the 1st Annual National Caregiving Conference is to connect caregivers with support and solutions, empower them with insights and information, and entertain them with engaging and enlightening presentations. It also aims to spark important conversations about what current and former family caregivers need in their communities, workplaces, and health care systems. Register here.
Aging in America 2017:
Annual Conference of the American Society on Aging
March 20-24, 2017 | Chicago
With hundreds of educational sessions, an exhibit hall featuring the latest products and services for older adults and those who serve them, and networking events each day, AiA17 is not to be missed! Register on October 3 here.
Don't miss our one day caregiving meeting at the Aging in America conference. More details to come in late 2016.
International Association of Gerontology and Geriatrics Conference
July 23-27, 2017 | San Fancisco, CA
Plan now to attend the largest, most significant worldwide conference on aging. Share in the latest science, research, training, technology, and policy development presented by experts from around the world. Discover all that's new, waiting for you in a single venue. Sign up to be notified of registration opening and other key dates.
If you would like the Alliance's President and CEO Gail Hunt to present on caregiving issues at your upcoming conference, please emailparys@caregiving.org.
STAY CONNECTED
National Alliance for Caregiving
4720 Montgomery Lane,Suite 205
Bethesda, Maryland 20814, United States
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