This Week in Caregiving for Monday, May 14, 2018
'This is Such a Gift': For Family Caregivers, a New Focus on SupportChicago Tribune | May 11, 2018
"Across the country, community groups, hospitals, government agencies and nonprofits are doing more to support the estimated 42 million people who are the primary caregivers of adults and children who have disabilities, are recovering from surgeries and illnesses or are coping with Alzheimer's and other chronic diseases. The National Gallery's program is part of the trend focusing on the health, well-being and education of caregivers."
Millennials Stepping Up: How Will We Take Care of Our Parents?
NBC News | May 8, 2018
"Where do we - the millennials still trying to figure it all out - fit into this? There are 44 million caregivers-those providing unpaid care for loved ones-in the United States, and a significant portion of them are millennials, often caring for a sick or aging parent. The answers do, however, arrive in pockets: the National Alliance for Caregiving provides helpful connections to support groups and caregiving courses."
Caregivers Need to Take a Break
Kiplinger | May 6, 2018
"Finding respite options is just part of the challenge. Tired caregivers sometimes refuse to allow themselves a break. A parent may complain that he won't feel comfortable with someone else. Or caregivers picture a relative left alone at an understaffed program."
Lowell Forum Held on Challenges for Family Caregivers
Lowell Sun | May 5, 2018
"Fallon Health hosted a caregiving symposium called The Costs of Caregiving. Keynote speaker Grace Whiting, who is the president and CEO of the National Alliance for Caregiving, told the 157 people in attendance that caregivers go through a range of emotions, including guilt, shame and bereavement. But feelings of meaning, purpose and faithfulness are also experienced."
Balancing Act - When Work and Caregiving Collide
Women's Brain Health Initiative | May 4, 2018
"On average, women are caregivers more often than men - although in the millennial cohort, men and women are equally as likely to be caregivers, says C. Grace Whiting, President and Chief Executive Officer at the National Alliance for Caregiving in the U.S. The type of care that women provide to loved ones is typically different than the care provided by their male counterparts."
Join Us: Rare Disease Capitol Hill Briefings
Thursday, May 17, 2018 in Washington, D.C., United States- House Briefing: 7:30 AM - 9:00 AM
- Senate Briefing: 9:00 AM - 10:30 AM
The briefings will explore policy recommendations and will highlight the unique challenges facing rare disease caregivers across the United States.
Learn more and register:
- House Briefing: https://raredisease_house.eventbrite.com
- Senate Briefing: https://raredisease_senate.eventbrite.com
Survey: Financial Support for Family Carers of Terminally Ill Patients
Researchers at the University of Sheffield are conducting a study to identify and compare sources of financial support for informal caregivers of those at the end of life across seven countries (UK, Australia, New Zealand, Canada, USA, Norway, Ireland). They have conducted a review of international literature and want to combine this information with data from a questionnaire to give them an overview of how caregivers are supported in different countries. Learn more and take the survey HERE.
Research Opportunities: Third Annual National Caregiving Conference
Are you conducting a caregiving research project and now need participants? Have you received a grant to research an issue and would like family caregivers and former family caregivers to participate in your research? Caregiving.com would love for you to conduct your research at their Third Annual National Caregiving Conference on November 9, 10, and 11 in Chicago. Learn more and sign up HERE.
Caregiving Events and Webinars
Digestive Disease Week
June 2-5, 2018 | Washington, DC
Recognized as one of the top 50 medical meetings by HCEA, Digestive Disease Week (DDW) is the world's largest gathering of physicians, researchers and industry in the fields of gastroenterology, hepatology, endoscopy and gastrointestinal surgery. Attend high-quality sessions where you can get practical and useful take-home information. Learn more and register HERE.
American Health Care Association Congressional Briefing
June 4-5, 2018 | Washington, DC
Come to Washington, D.C., and raise your voice! American Health Care Association's Congressional Briefing helps you be heard as you personally meet with your Members of Congress and their staff. Get an update on the latest happenings in long term and post-acute care, make an effective plan of action with your peers, and take your message directly to the Hill. Learn more and register HERE.
The Millennial Perspective: An Intergenerational Discussion on Retirement Solutions
June 20, 2018 | Washington, DC
This annual Women's Institute for a Secure Retirement (WISER) forum features the iOme Challenge winning team of college students who will discuss their advisory paper in response to this year's Challenge question. A keynote speaker, panels of experts and congressional staff leaders will also discuss current issues and legislative proposals. Learn more and register HERE.
Healthy Aging Summit
July 16-17, 2018 | Washington, DC
The 2018 Healthy Aging Summit will explore ways to keep Americans healthy as they transition into older adulthood and maximize the health of all older adults. The Summit will focus on prevention strategies that encourage healthy lifestyles, planning for aging, and improving the use of preventive services. Learn more and register HERE.
n4a Annual Conference and Tradeshow
July 28-August 1, 2018 | Chicago, IL
The n4a Annual Conference & Tradeshow is the largest and most prestigious gathering of local aging leaders and professionals in the United States. More than 1,000 Aging Network professionals, as well as nationally renowned decision-makers and experts, participate in the Conference because they know that the issues and programs they care about most will be showcased. Learn more and register HERE.
Global Genes RARE Patient Advocacy Summit
October 3-4, 2018 | Irvine, CA
The RARE Patient Advocacy Summit is the can't-miss event of the year for rare disease stakeholders. The Summit is the largest gathering of rare disease patients, advocates, and thought leaders worldwide. Take advantage of this opportunity to connect and learn from more than 200 experts in rare disease leading 100 educational sessions. Learn more and register HERE.
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