Monday, July 2, 2018
As Number of Male Caregivers Grows, So Does the Support System
WUSA 9 | June 26, 2018
"Scott Williams, a Vice President at EMD Serono [and a National Alliance for Caregiving Board Member], says men tend to be less likely to ask for help, meaning that they miss out on important resources. 'What we're seeing is that men are more and more taking on this role...they think they're doing this for their family or loved ones, but we're finding that they're seeking support less because they're not identifying themselves as a caregiver."
What Marilu Henner Learned While Caregiving for Her Husband
Parade | June 25, 2018
"As a caregiver, you not only have to give that emotional support but not get caught up in the jet wash of doom and gloom. It's really alsobecoming a good listener and not taking anything personally...there's going to be shame and blame and pointing fingers and so many other things. You kind of have to ride the wave and stay above the fray."
Research Presented At Drug Information Association (DIA) Meeting In Boston Shows Caregivers Play Major Role In Medical Decision-Making
PR Newswire | June 28, 2018
"Findings from a recent online survey conducted by Rx4good in collaboration with 70 leading organizations, show that caregivers play a central and multi-dimensional role in researching and participating in the medical care decisions of their loved ones. According to the results, presented [last week] at the DIA meeting, 91% of caregivers report being "very involved" in medical choices and/or treatment decisions."
Caregiver Action Network Launches Tool to Provide Caregivers in Medically Underserved Areas with Interactive Online Support
PR Newswire | June 25, 2018
"Through the program, family caregivers who experience a shortage of local resources to get help and support will now be able to receive them from caregiving experts through the Internet. In so doing, it will create new opportunities outside the limits of geographic isolation or other reasons for their area's underserved status."
ADDISON CARE: Virtual Caregiver Poised to Dramatically Reduce Cost of Home Health Care
Markets Insider | June 22, 2018
"Live caregiving has been out of reach for the majority of those who need it. Live caregiving can cost thousands per month and is a requirement for some patients. There are millions of patients aging at risk looking for a solution that costs only hundreds per month. Addison Care is going to fill a big gap in the market."
Blue Cross' Dr. Dan Trajano Talks About the Business Case to Support Caregivers
Minneapolis Star Tribune | June 22, 2018
"Trajano said there's a business case for health insurers to find more ways to support the friends and family who help keep their members healthy, particularly as the baby boom generation gets older. 'Our company wants to be a resource to help and support not only the patients and our members, but also those who are caring for them - including our employees."
Caregiving Policy Updates
Massachusetts Becomes Sixth State in the Nation to Require Paid Leave
Last week, Massachusetts Governor Charlie Baker signed a bill that willallow workers to take up to 12 weeks of paid leave to care for a sick family member or new baby and up to 20 weeks of paid leave for their own medical needs. Massachusetts joins five other states who currently have paid family leave programs: California, New York, New Jersey, Rhode Island, and Washington. Learn more HERE.
PCHETA Passes House Energy and Commerce Subcommittee on Health
Last week, the Palliative Care and Hospice Education and Training (PCHETA) Act (H.R. 1676, S. 693) passed the House Energy & Commerce Subcommittee on Health by voice vote and was reported to the full committee for consideration. This bill would increase the number of permanent faculty in palliative care at accredited allopathic and osteopathic medical schools, nursing schools, and other programs to promote education and research in palliative care and to support the development of faculty careers in academic palliative medicine. Watch the mark-up and learn more HERE.
Caregiving Resources
Medicare Card Mailing Update - Wave 3 Begins, Wave 1 Ends
The Centers for Medicare & Medicaid Services (CMS) is required to remove Social Security Numbers from all Medicare cards by April 2019. CMS has started mailing new Medicare cards to people with Medicare who live in Wave 3 and continue to mail new cards to people who live in Wave 2 states. At this time, they have finished mailing most cards to people with Medicare who live in Wave 1 states. To learn which Wave your state is in, and to learn more about the mailings progress, please go HERE.
LivingSmart, a Caregiver Wellness and Lifestyle Management System
To help caregivers establish and maintain independence and self-assuredness with self-care management skills, LivingSmart provides personal wellness assessments and monitoring tools for improvements, health education guidelines and articles, activity/exercise program instructions, nutrition and meal planning tools, a remote app that includes scheduling and reminder functions, a health library, a community fellowship blog, and a free tobacco addiction recovery program. Learn more HERE.
Caregiving Research
Randomized Trial of Family-Support Intervention in Intensive Care Units
In a study sponsored by the UPMC Health System and the Greenwall Foundation, researchers found that among critically ill patients and their surrogates, a family-support intervention delivered by an interprofessional ICU team does not significantly affect the surrogates' burden of psychological symptoms. However, the surrogates' ratings of the quality of communication and the patient- and family-centeredness of care were better and the length of stay in the ICU was shorter with the intervention than with usual care. The study was published in the New England Journal of Medicine and can be found HERE.
GSA Journal Open Call for Papers
The Gerontological Society of America (GSA) online journal, Innovation in Aging, is currently accepting submissions for a special issue, "Translational Research on Caregiving to Improve Outcomes of Care Recipients and Caregivers," planned for the November 2019 issue. Abstract submissions are due August 1, 2018, and manuscript submissions will be due February 1, 2019. Learn more HERE.
Caregiving Events and Webinars
AHQA Quality Summit
July 9-10, 2018 | Baltimore, MD
The American Health Quality Association (AHQA) Summit offers a focused, annual opportunity for quality improvement experts from around the country to network with their colleagues, grow in their capacities as professionals, and learn some of the best practices being applied now in the field. Peer-led presentations provide attendees the opportunity for in-depth interaction and discussion with experts and researchers who are offering to share best practices. Learn more and register HERE.
Webinar: Supporting a New Generation of Caregivers
July 12, 2018 | 2:00-3:00PM ET | Online
Research conducted by Gallup shows that the negative effects of caregiving are particularly severe for younger caregivers. AARP has gathered data indicating that the caregiving community is becoming younger and more diverse. Join C-TAC, AARP, and Gallup for a discussion of the challenges caregivers face and what advocates are doing to support them. Learn more and register HERE.
Alzheimer's Association International Conference
July 22-26, 2018 | Chicago, IL
The Alzheimer's Association International Conference (AAIC) is the largest and most influential international meeting dedicated to advancing dementia science. Each year, AAIC convenes the world's leading basic science and clinical researchers, next generation investigators, clinicians, and the care research community to share research discoveries that will lead to methods of prevention and treatment. Learn more and registerHERE.
n4a Annual Conference and Tradeshow
July 28-August 1, 2018 | Chicago, IL
The n4a Annual Conference & Tradeshow is the largest and most prestigious gathering of local aging leaders and professionals in the United States. More than 1,000 Aging Network professionals, as well as nationally renowned decision-makers and experts, participate in the Conference because they know that the issues and programs they care about most will be showcased. Learn more and register HERE.
Global Genes RARE Patient Advocacy Summit
October 3-4, 2018 | Irvine, CA
The RARE Patient Advocacy Summit is the can't-miss event of the year for rare disease stakeholders. The Summit is the largest gathering of rare disease patients, advocates, and thought leaders worldwide. Take advantage of this opportunity to connect and learn from more than 200 experts in rare disease leading 100 educational sessions. Learn more and register HERE.
National Caregivers Conference
October 11, 2018 | Woodbridge, NJ
The National Caregivers Conference, "Health, Technology, and the Family Caregiver," will bring innovative solutions to the increasing demand on family caregivers across the nation while showcasing projects that use technology to improve health and quality of life. This year's conference will feature the nation's first Caregiver Shark Tank. Learn more and register HERE.
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National Alliance for Caregiving www.caregiving.org
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