"This Week in Caregiving": Monday, April 2, 2018 - National Alliance for Caregiving in Bethesda, Maryland, United States for Monday, 2 April 2018
MondayApril 2, 2018
Five Ways HHS Can Better Support Family Caregivers
Medium | March 28, 2018
"The RAISE Family Caregivers Act requires the Secretary of Health and Human Services (HHS) to develop, support, and revise, as needed, an integrated national strategy to support family caregivers. Anne Tumlinson Innovations (ATI) suggests five actions the Secretary can make to improve how our healthcare system supports family caregivers."
Four Influencers In Aging On The Future Of Aging In America
Forbes | March 28, 2018
"Four of Next Avenue's 2017 group of the 50 Influencers in Aging just spoke to a standing-room-only crowd at the American Society on Aging's 2018 Aging in America conference in San Francisco. Their topic, appropriately: The future of Aging in America."
LGBT Adults Fear Discrimination in Long-Term Care
AARP | March 27, 2018
"Many lesbian, gay, bisexual or transgender (LGBT) older adults are worried that they won't have the familial and social caregiving support they'll need as they grow older. They are also concerned that they will face discrimination or harassment in long-term care facilities. Those are the findings of a new AARP survey of LGBT adults age 45-plus, 'Maintaining Dignity: Understanding and Responding to the Challenges Facing Older LGBT Americans."
Maria Shriver Shares Advice On Managing Caregivers At Work
Forbes | March 23, 2018
"As Baby Boomers age, many employees are taking on the role of caregiver at home to an aging relative. More than one in six Americans are working full- or part-time and caring for an elderly or disabled family member, according to a Gallup-Healthways survey. In addition, 70% of caregivers reported work-related difficulties as a result of their dual roles, according to the National Alliance for Caregiving and AARP."
Balancing the Burden of Care: Impact of Policies on Productivity
The Wilson Center | March 22, 2018
National Alliance for Caregiving President and CEO C. Grace Whiting recently joined the Wilson Center and EMD Serono for a panel discussion with private sector and policy leaders on identifying policies that can alleviate the health impacts on caregivers, and create equitable work environments where talented women and men can rise and thrive, without sacrificing their health. Watch the full webcast HERE.
Spotting Alzheimer's Early Could Save America $7.9 Trillion
Bloomberg | March 20, 2018
"The cost of caring for Americans with Alzheimer's will rise by $20 billion this year, compared with 2017 spending. That doesn't include the burden that falls on unpaid caregivers such as family and friends, who last year provided 18.4 billion hours of unpaid care. The hours were calculated based on a follow-up analysis of results from the 2009 National Alliance for Caregiving/AARP national telephone survey."
SAVE THE DATE: National Alliance for Caregiving Webinar
The National Alliance for Caregiving and Global Genes recently released Rare Disease Caregiving in America, a national research study capturing the experiences of more than 1,400 family caregivers of children and adults with a rare disease, condition, or disorder across 400 different diseases. Findings in this first-of-its-kind national snapshot paint a picture of friends and families facing emotional, financial, physical, and social strain with little support from outside resources.
Join this national webinar for an overview of this groundbreaking report and to share your questions and insights into rare caregiving. Register HERE.
Caregiving Research
Family Caregiver Satisfaction With End-of-Life Care Following Advanced Cancer
A longitudinal National Institutes of Health-funded study conducted at the Frances Payne Bolton School of Nursing is examining aggressiveness of end-of-life care in advanced cancer among patients, family caregivers, nurses, and physicians. Learn more HERE.
Call for Participants: Living With and Caring For a Post- 9/11 Veteran or Service Member with a TBI
The U.S. Department of Defense has awarded a research grant to Duquesne University School of Nursing to learn what it is like to provide care and assistance to a Service Member or Veteran with a traumatic brain injury (TBI). The researchers want to understand if education about problem-solving training improves caregiver mental health and quality of life. For more information and to enroll in the study, please go HERE.
Call for Participants: A Global Survey of the Health Behaviors and Health-Related Needs of Informal Caregivers
A team of researchers at the School of Medicine and Public Health at the University of Newcastle are conducting a global online survey of caregivers in order to study the prevalence of health risk behaviors and unmet needs of informal caregivers of a person with a health concern requiring in-home care. For more information and to take the survey, please go HERE.
State and Local Coalition Updates
Greater Wisconsin Agency on Aging Resources, Inc.
The Greater Wisconsin Agency on Aging Resources, Inc. (GWAAR) announces the third annual Wisconsin Aging Advocacy Day (#WIAAD) on May 16, 2018 in Madison and encourages the public to participate in this important day focused on educating legislators about specific policy issues and proposals to enhance the aging network's role in building and supporting resilience among Wisconsin's older adults. Learn more HERE. GWAAR is also pleased to announce the passage of a number of bills in the state legislature that are now awaiting the Governor's signature, including AB 655, which allows for Supported Decision-Making Agreements. Learn more HERE.
Advocacy Tip of the Week
Read more advocacy tips in our recent report
From Insight to Advocacy: Addressing Family Caregiving as a Public Health Issue.
Caregiving Events and Webinars
ACL Funding Opportunity for ADI-SSS Program
Deadline: April 7, 2018 | Online
The Administration for Community Living's (ACL) Administration on Aging announces the release of a new funding opportunity for their Alzheimer's Disease Initiative-Specialized Supportive Services (ADI-SSS) program. The program is designed to expand existing dementia capability in home and community-based service provision organizations. All successful applications will include the implementation of at least one evidence-based or evidence informed intervention designed to support individuals with ADRD and/or their caregivers. Learn more HERE.
NDSS Down Syndrome Adult Summit
April 9-10, 2018 | Arlington, Virginia
The NDSS Down Syndrome Adult Summit is a conference hosted by the National Down Syndrome Society (NDSS) in collaboration with the National Task Group on Intellectual Disabilities and Dementia Practices and the National Alliance for Caregiving to discuss important and critical topics for all adults with Down Syndrome. Topics will align with NDSS' robust and comprehensive programs and pillars, including healthcare and research, inclusive education, community integration, and economic self-sufficiency. To register and learn more, click HERE.
n4a Aging Policy Briefing & Capitol Hill Day
April 18-19, 2018 | Washington, DC
Next month, n4a will bring together stakeholders from across the country, Members of Congress, and other experts to hear details about ongoing Trump Administration plans for vital federal programs serving older adults, to learn from national experts on breaking aging and health care policy issues in Congress, and to explore advocacy best practices and strategies in a changing policy environment. Learn more and register HERE.
IHI Change Conference: Radical Redesign in Complex Systems
April 19-20, 2018 | Washington, DC
In the two-day 2018 Institute for Healthcare Improvement (IHI) Change Conference: Radical Redesign for Complex Systems, you will join other senior leaders to learn how innovative principles such as changing the balance of power; making it easy; moving knowledge, not people; assuming abundance; creating joy in work and others are used to break from the status quo in complex health systems. Learn more and register HERE.
RARE Patient Advocacy Symposium
May 19, 2018 | Philadelphia, PA
Global Genes and the University of Pennsylvania Orphan Disease Center (ODC) have announced the third annual Patient Symposium, in conjunction with UPenn's Million Dollar Bike Ride (MDBR). The Symposium has been developed for patient advocates to learn, connect and be inspired. Learn more and register HERE.
Send your caregiving news and events to
info@caregiving.org.
National Alliance for Caregiving www.caregiving.org
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