in Bethesda, Maryland, United States for Monday, 9 April 2018
This Week in Caregiving
Monday, April 9, 2018 Caring for Elderly Parents Can Put a Dent in Your Budget
CNBC | April 4, 2018
"If money is tight and paying for insurance premiums is unrealistic, it's still worth sitting down with your parents and having a gentle conversation about how they are planning for their future needs. The idea is that the better prepared you are for the cost of caregiving and are aware of all available resources and options, the less disruptive the care will be to your financial situation."
Leader in Smart Family Caregiving, Elizz Connects Caregivers Worldwide
Markets Insider | April 3, 2018
"Elizz, a leader in smart family caregiving, powered by Saint Elizabeth Health Care, created an interactive online tool - 'How are you feeling today?' or #HAYFT - to help caregivers understand they are not alone and that others are feeling the same way."
Positive Topline Results From Phase 3 ATTR-ACT Study of Tafamidis in Patients With Transthyretin Cardiomyopathy
Pfizer | March 29, 2018
"These topline results are important for people with transthyretin cardiomyopathy and bring us one step closer to realizing the potential for a new treatment for those in desperate need,' said Brenda Cooperstone MD, senior vice president and chief development officer, Rare Disease, Pfizer Global Product Development."
Medically Complex Elders Experience Better Outcomes When Supported by a Technology-Enabled Team of Family Caregivers and Clinicians
Cision, PR Newswire | March 29, 2018
"An analysis of data from almost 2,000 Seniorlink patients compared with the national benchmark Medicare Current Beneficiaries Survey (MCBS) found that when technology-enabled family caregivers and clinical teams collaborate, patients age 65 and older have fewer incidences of falls, hospitalizations and emergency room visits, thereby reducing healthcare costs."
Building Our Army of Advocates
Stria News | March 20, 2018
"LeadingAge has embarked on a public awareness campaign targeting the millennial generation for a couple of reasons: they are more civically-minded and more likely to share their opinions on social media than other generations. If we can educate this targeted audience about the myriad issues around long-term services and supports, we will have an already-established group ready to take action when the time is right."
JOIN US: National Alliance for Caregiving Webinar
The National Alliance for Caregiving and Global Genes recently released Rare Disease Caregiving in America, a national research study capturing the experiences of more than 1,400 family caregivers of children and adults with a rare disease, condition, or disorder across 400 different diseases. Findings in this first-of-its-kind national snapshot paint a picture of friends and families facing emotional, financial, physical, and social strain with little support from outside resources.
Join this national webinar for an overview of this groundbreaking report and to share your questions and insights into rare caregiving. Register HERE.
Caregiving Research and Resources
Tools for Distance Delivery of an Evidence-based AD Family Caregiver Intervention
The NYU Caregiver Intervention (NYUCI) provides counseling and support to caregivers and their families. This program, studied for many years at NYU, has many proven benefits when offered in person, and is now being evaluated to determine its effectiveness online. If you are living with your spouse or partner with memory loss, Alzheimer's disease, or a related dementia and have at least one family member who could participate via video teleconferencing, you may be eligible for this study. Learn more HERE.
Roadmap for Transportation Independence
Older people who are able to maintain connections to family, friends and the broader community are more likely to enjoy the benefits of aging in place. Use this guide from Eldercare Locator and the National Aging and Disability Transportation Center to help your care recipient determine whether their driving skills are changing and to help them identify available transportation in your area. View the guide HERE.
Family Caregiver Distress Assessment Tool
It's important for caregivers to know how stress is affecting them. Use this Family Caregiver Distress Assessment from Home Instead Senior Care to identify the things that might make caregiving more challenging, and what can be done to address those challenges. Take the assessment HERE.
State Caregiving Policy Updates
We Need the Iowa CARE Act
The Gazette | April 3, 2018
"As this year's state legislative session nears conclusion, a number of statewide organizations representing hundreds of thousands of Iowans have joined together to urge passage of the 2018 Iowa CARE Act. This is a no-cost, common sense step to support Iowa's caregiving families when their loved ones go into the hospital and as they transition home."
R.I. Bill Would Expand Caregiver Insurance Program
Providence Journal | March 29, 2018
"Advocates are seeking to expand the reach of Rhode Island's 'caregiver insurance program' to workers seeking up to eight weeks of paid time off to care for an ill grandchild or sibling...if the proposed expansion is passed, those who qualify could get a portion (up to 60 percent) of their salary paid by the [Temporary Caregiver Insurance] program for up to six weeks, starting on Jan. 1, 2019, and up to eight weeks, starting on Jan. 1, 2020."
Caregiving Events and Webinars
Ending Ageism & Reframing Aging - Your Role as an Advocate
April 18, 2018 | Washington, DC
Later this month, Greater Washington Roundtable will feature a presentation by Bob Stein, President & CEO of the American Society on Aging. This collaborative, two-year project of the Frameworks Institute in Washington, DC, ASA, and seven other aging organizations, reaffirmed that as Americans live longer and healthier lives, it's essential that society adjust both its attitudes toward aging and its systems that support and shape well-being in later life. Learn more and register HERE.
n4a Aging Policy Briefing & Capitol Hill Day
April 18-19, 2018 | Washington, DC
Next month, n4a will bring together stakeholders from across the country, Members of Congress, and other experts to hear details about ongoing Trump Administration plans for vital federal programs serving older adults, to learn from national experts on breaking aging and health care policy issues in Congress, and to explore advocacy best practices and strategies in a changing policy environment. Learn more and register HERE.
IHI Change Conference: Radical Redesign in Complex Systems
April 19-20, 2018 | Washington, DC
In the two-day 2018 Institute for Healthcare Improvement (IHI) Change Conference: Radical Redesign for Complex Systems, you will join other senior leaders to learn how innovative principles such as changing the balance of power; making it easy; moving knowledge, not people; assuming abundance; creating joy in work and others are used to break from the status quo in complex health systems. Learn more and register HERE.
Webinar: Alzheimer's Disease and Spouse Caregiver Support
April 25, 2018 | 11am EST | Online
This webinar, hosted by Family Caregiver Alliance, will identify the issues and challenges that confront the spouse/partner caregiver of a person living with dementia at each stage of the illness. Common themes will be highlighted and the importance for family caregivers to appreciate and respect individual differences-as they chart the course of their caregiving journey-will be demonstrated. Learn more and register HERE.
RARE Patient Advocacy Symposium
May 19, 2018 | Philadelphia, PA
Global Genes and the University of Pennsylvania Orphan Disease Center (ODC) have announced the third annual Patient Symposium, in conjunction with UPenn's Million Dollar Bike Ride (MDBR). The Symposium has been developed for patient advocates to learn, connect and be inspired. Learn more and register HERE.
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info@caregiving.org.
National Alliance for Caregiving www.caregiving.org
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