Monday, August 13, 2018
The Call to Care for Aging Parents Comes Sooner Now
The Wall Street Journal | August 6, 2018
"It can also affect their jobs. About one in three millennials who are taking care of someone with dementia, which is the most demanding type of family caregiving, said they have cut back hours, lost benefits or been fired because of caregiving demands, according to a 2017 report by UsAgainst Alzheimer's and USC Edward R. Roybal Institute on Aging."
Six Factors to Consider Before Using Your Retirement Savings for Caregiving
U.S. News and World Report | August 8, 2018
"These extra costs frequently create tension even for caregivers with financially sound budgets. It might be hard to set aside money for your own retirement, or you may consider withdrawing money from your retirement accounts to pay for care. To avoid dipping into savings, follow these expert-backed strategies to reduce what you need to spend on caregiving. Read on to learn what can be done to help alleviate costs and preserve your own retirement funds."
Too Little Too Late: Bankruptcy Booms Among Older Americans
The New York Times | August 5, 2018
"For a rapidly growing share of older Americans, traditional ideas about life in retirement are being upended by a dismal reality: bankruptcy. The signs of potential trouble - vanishing pensions, soaring medical expenses, inadequate savings - have been building for years. Now, new research sheds light on the scope of the problem: The rate of people 65 and older filing for bankruptcy is three times what it was in 1991, and the same group accounts for a far greater share of all filers."
Obstacles to Practicing Kindness in Caregiving
Caregiver SOS | August 3, 2018
"Being a primary caregiver can be a thankless job - particularly when you're doing the best you can, and it's still not enough. Family dynamics can be treacherous. Other family members may have very strong opinions about how they think things should be handled. Fortunate is the family that can work together for the greatest good without breaking the ties that bind."
Caring for an Aging Parent Can Unite Siblings - Or Deepen Divides
Considerable | July 31, 2018
"Resentments often run high when the major caregiver, typically the adult daughter who lives closest to the parent, feels as if he or she is doing everything, says Lynn Feinberg, senior strategic policy advisor at AARP. And often care needs to be sorted out at a moment's notice when a parent has been hospitalized. "It can become stressful, challenging, and emotional, because you're dealing with complex family systems, often anticipating the loss of a parent,' says Feinberg."
Get Engaged
Supporting Wellness: A Survey of Lived Experience and Research Priorities for Depression and Bipolar
The Depression and Bipolar Support Alliance and the Milken Institute Center for Strategic Philanthropy are working together to better understand how adults affected by depression and bipolar describe wellness and what types of research matter most to them. As a starting point, they use the term "wellness" to represent overall quality of life and the pursuit of optimal emotional, mental, and physical health. The purpose of this survey is to support patient-centered development of new medical products and care, as well as to influence research funders to support research that reflects the community's top priorities. Take the survey HERE.
GSA Journal Open Call for Papers
There is a crucial need for translational research on caregiving across cultural, physical, and geographic settings as much remains to be understood about the complex challenges associated with caregiving. The Gerontological Society of America (GSA) online journal, Innovation in Aging, is currently accepting submissions for a special issue, "Translational Research on Caregiving to Improve Outcomes of Care Recipients and Caregivers," planned for the November 2019 issue. Abstract submissions are due September 1, 2018. Learn more HERE.
Caregiving Research and Resources
Designing a Medicare Help at Home Benefit: Lessons from Maryland's Community First Choice Program
Medicare does not cover home- and community-based services (HCBS) that help beneficiaries function independently at home. The financial burden of uncovered personal care services puts beneficiaries with physical or cognitive impairment at risk of nursing home placement. Results from a program in Maryland suggest that a Medicare benefit to cover at-home personal care services could be feasible. The Commonwealth Fund recently published a study of Maryland's program with implications for expansion. Learn more HERE.
National Resource Directory for Military, Veterans, and Families
The new-look National Resource Directory website makes it easier to find resources you need. NRD has also made it easier to submit new resources. The NRD and the Office of Warrior Care Policy engage with programs for Service Members and Veterans across the Department of Defense, Department of Veterans Affairs, other U.S. Government agencies, and associated organizations. Resources are consistently vetted, reviewed, and maintained. View the resources HERE.
Caregiving Events and Webinars
Caregiver Factor Research Results Webinar
August 21, 2018 |12:00PM ET and 1:00PM ET | Online
Rx4good will present key findings of their recent Caregiver Factor Survey-including snapshots of the data in five key disease areas - as well as the implications of the research on engagement strategies. C. Grace Whiting, president & CEO of the National Alliance for Caregiving, will join to present on the implications of the research on policy and advocacy priorities. Register for the 12pm webinar HERE and the 1pm webinar HERE.
World Congress: Social Determinants of Health for Complex Populations
September 11-12, 2018 | Alexandria, VA
The 2nd Annual Payer and Provider Summit convenes health care leaders to learn about cross-sector initiatives aimed at removing socioeconomic barriers to care that drive unnecessary utilization and costs. Attendees discuss ways to identify and engage members and patients, align partners, and establish community-wide networks that help build capacity and meet the basic needs of high-risk individuals.Learn more and register HERE.
Global Genes RARE Patient Advocacy Summit
October 3-4, 2018 | Irvine, CA
The RARE Patient Advocacy Summit is the can't-miss event of the year for rare disease stakeholders. The Summit is the largest gathering of rare disease patients, advocates, and thought leaders worldwide. Take advantage of this opportunity to connect and learn from more than 200 experts in rare disease leading 100 educational sessions. Learn more and register HERE.
Family Resource Network's National Caregivers Conference
October 11, 2018 | Woodbridge, NJ
The National Caregivers Conference, "Health, Technology, and the Family Caregiver," will bring innovative solutions to the increasing demand on family caregivers across the nation while showcasing projects that use technology to improve health and quality of life. This year's conference will feature the nation's first Caregiver Shark Tank. Learn more and register HERE.
BIO Patient and Health Advocacy Summit
October 25-26, 2018 | Washington, DC
Now in its seventh year, this event convenes patient advocacy organizations, academia, regulators, the biotechnology industry, and other healthcare stakeholders for two days of robust programming to discuss timely policy issues and share best practices. Learn from and network with key stakeholders in the healthcare ecosystem. Learn more and register HERE.
Caregiving.com's National Caregiving Conference
November 8-11, 2018 | Chicago, IL and Online
Caregiving.com's annual conference brings together family caregivers and former family caregivers from across the country. This year's conference theme, Our Best Selves, encourages us to look at how we do our best during an experience that feels like the worst. Their conference features presentations and panel discussions from family caregivers and former family caregivers. Learn more and registerHERE.
Send your caregiving news and events to
National Alliance for Caregiving www.caregiving.org
STAY CONNECTED:
National Alliance for Caregiving
4720 Montgomery Lane ,Suite 205
Bethesda, Maryland 20814, United States
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