National Alliance for Caregiving for Wednesday, January 17, 2018
Tech Advances for Long-Distance Care of Aging Parents
Health News Digest | January 13, 2018
"Caregivers are typically classified as those who are unpaid for their role in caring for [a disabled] family member or aging relatives. In numbers produced by the National Alliance for Caregiving and AARP, approximately 43.5 million Americans have provided this type of care within the last 12 months. The Alzheimer's Association notes that 15.7 million family caregivers care for someone with age-related dementia. These duties, however, can pull caregivers away from their jobs, which result in missed workdays and a reduced income."
Congress Puts Caregiving on the National Agenda
Minneapolis Star Tribune | January 12, 2018
"Bipartisan legislation is on its way to President Donald Trump's desk that will establish a national strategy to bolster the work of informal caregivers, who provide more than $470 billion in unpaid care for America's older adults each year, often with little support from the workplace or health care system. The RAISE Family Caregivers Act is seen by advocates as a small but notable first step to focus the nation's policies and resources on the growing burdens on family members, whose work will become increasingly vital as society ages in the decades ahead."
Her Sister's Keeper: Caring for a Sibling With Mental Illness
Kaiser Health News | January 9, 2018
"An estimated 8.4 million Americans are caregivers to adult loved ones with a mental illness, most often a son or daughter, parent, spouse or sibling. 'Caregiving situations for siblings pack an extra emotional punch for the caregiver,' said John Schall, who runs the Caregiver Action Network, a nonprofit organization that supports people providing care to loved ones. 'It's not unusual for us to think at some point of being the caregiver for our elderly parents, but it's a whole different thing to be a caregiver for a sibling who we always thought of as equals.' "
Special Announcement
National Alliance for Caregiving Names C. Grace Whiting As President and CEO
Cision, PR Web | January 8, 2018
"Over the past 22 years, we've built the Alliance into the premier family caregiving organization. I'm confident that Grace will now take us to the next level, through her vision and ability to forge excellent partnerships," said Founding President and CEO Gail Gibson Hunt. Read the full announcement HERE.
New Resources for Caregivers
HRSA Training Curriculum: Alzheimer's Disease and Related Dementias
Training for the primary care workforce about dementia, and caring for those affected, is essential. The facts are compelling: currently more than five million Americans live with Alzheimer's disease. Ultimately, one out of every three Americans will die from Alzheimer's disease or another dementia. With federal partners and public stakeholders, HRSA created a curriculum - 16 core modules and four supplemental modules - for health educators to train the primary care workforce about dementia care, and to help providers address caregiver needs. Access the training curriculum HERE.
forCare: A Comprehensive Caregiving Tool
Developed by Novartis Pharmaceuticals Corporation, the new forCare™ app equips caregivers with information, tools, and resources that can help them support their loved ones. It gives users an easy way to track medication and doctor appointments, access key health information, and coordinate care with others. The app also offers exercises, activities, and tips to help caregivers find balance and avoid burnout. It is compatible with iPhone, iPad, and iPod touch. Learn more HERE.
Caregiving Policy Updates
Senate Passes RAISE Family Caregivers Act
Last week, the Senate passed the bipartisan Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act (S. 1028/H.R. 3759). The bill directs the Department of Health and Human Services (HHS) to develop, maintain, and periodically update a National Family Caregiving Strategy. Now that the Senate has passed the consolidated version of the bill, it will be headed to the President for his signature. Read the new blog from AARP Public Policy Institute's Lynn Friss Feinberg to learn why a coordinated strategy is important now more than ever - and how it can serve as a policy roadmap for action in the public and private sectors.
LEAD Coalition Releases Issue Brief on the Importance of Medicaid
The LEAD Coalition recently released an Issue Brief on the vital role that Medicaid plays in providing essential medical and support services for individuals and families impacted by Alzheimer's disease and other forms of dementia. The Issue Brief notes that people living with dementia often count on Medicaid for services that Medicare and private insurance do not cover, including long-term care, transportation, and respite for caregivers. Read the Issue Brief here, then call your Members of Congress at 202-224-3121 and tell them, "Protect Medicaid: no cuts, no caps, no block grants!"
Cool Post of the Week
AARP Explores Utility and Functionality of Tech Platforms Designed for Family Caregivers
Cision, PR Newswire
Caregiving Events and Webinars
WellMed Charitable Foundation Grant Awards
Now-February 15, 2018 | Apply Online
The WellMed Charitable Foundation (WCF) is seeking to award grants in local WellMed markets in 2018. The WellMed Charitable Foundation supports seniors and their caregivers as a primary focus of their mission, and these grants are intended to reflect this population. The WCF intends to award one grant of up to $20,000 in each local WellMed market. To view the list of local markets and learn how to submit a proposal, go HERE.
Alzheimer's Foundation of America's Care Connection Webinar: Spiritual Wellness
February 8, 2018 | 1:00PM EST | Webinar
Placing your own needs on the back burner is very common when caring for a loved one with dementia, but ignoring your personal needs opens the door to distress. This webinar will highlight the importance of self-care for the body and mind and living in a manner consistent with your core values so that you can thrive as a caregiver. To register, click HERE.
Alzheimer's Foundation of America's Care Connection Special Webinar: Keeping Love Alive as Memories Fade
February 14, 2018 | 1:00PM EST | Webinar
In the 80's, Tina Turner had us all singing, "What's love got to do with it?" If you're a dementia care partner, you now know the answer: everything! In our Valentine's Day webinar, we'll talk about real love - the choice-driven kind of love that hangs in there when "for better or for worse" turns out to be worse. We'll also talk about caregiver guilt, and why it's okay to take extra good care of yourself. To register, click HERE.
NQF Annual Conference
March 12-13, 2018 | Washington, DC
National Quality Forum's (NQF) 2018 Annual Conference will focus on: Fulfilling The Quality Mandate - Are We Closer To Safer, More Effective, and Affordable Care? This must-attend event is for executives and leaders from across the healthcare continuum committed to quality improvement and patient safety - and it is the only event of its kind to focus exclusively on the importance of quality in healthcare delivery and health policy. To register and learn more about this event, click HERE.
What's Next Boomer Business Summit
March 28, 2018 | San Francisco, California
It takes seven years to build a business. Start now to meet the needs of the boomers as they reach their 70s. Meet the entrepreneurs, corporate executives, foundations, investors, and distribution partners who are building the infrastructure of this $7 trillion economic opportunity. The 15th Annual What's Next Boomer Business Summit is the nation's leading opportunity for making deals, finding partnerships, and launching products for older consumers. To register and learn more about this event, click HERE.
Patient Day 2018
April 7, 2018 | Novato, California
Please join us for Patient Day 2018 at Ultragenyx in Novato, CA on Saturday, April 7, 2018, for a day of live music, food, games, refreshments, and much more! Patient Day is held to honor patients with rare diseases. A limited number of travel scholarships will be available for patients and loved ones that may be joining them to support their participation in Patient Day 2018. For event details, travel scholarship information, and to register, please go HERE.
NDSS Down Syndrome Adult Summit
April 9-10, 2018 | Arlington, Virginia
The NDSS Down Syndrome Adult Summit is a conference hosted by the National Down Syndrome Society (NDSS) and its Self-Advocate Advisory Board in collaboration with the National Task Group on Intellectual Disabilities and Dementia Practices and the National Alliance for Caregiving to discuss important and critical topics for all adults with Down Syndrome. Speakers and topics will align with NDSS' robust and comprehensive programs and pillars, including healthcare and research, inclusive education, community integration, and economic self-sufficiency. To register and learn more about this event, click HERE.
AGS Annual Scientific Meeting
May 3-5, 2018 | Orlando, Florida
Healthcare providers from an array of professions and specialties consider the American Geriatrics Society (AGS) Annual Scientific Meeting the premier professional forum for information on geriatrics research, clinical practice, and professional education. The AGS Annual Meeting Exhibit & Support Program gives companies and non-profit organizations an excellent place to spotlight new products and services, reaching the most influential leaders and decision-makers in geriatrics. To register and learn more about this event, click HERE.
Find rates and register here.
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