National Alliance for Caregiving for Friday. August 25, 2017
This Week In Caregiving
August 19-25, 2017
Caregiving needs double as end of life nears
U.S. News and Health Report | August 22, 2017
"Reliance on caregivers doubles as people near death, and half of those caregivers -- typically unpaid family members -- report having no time for themselves, a new study indicates.The research used a nationally representative sample of about 2,400 older adults in the United States. The study authors found that caregivers provided nearly twice the number of hours of help each week to dying individuals than to those not at the end of life."
The case for changing "caregiver" for cancer patients
HuffPost | August 19, 2017
"Prior to my receiving my first breast cancer diagnosis, when I heard the word 'caregiver', I would think of those individuals who worked in nursing homes and other similar facilities or who came to a patient's home to provide medical or physical therapy-type services. Therefore, when I heard my husband and friends referred to as my caregivers, this title did not ring true to me."
Depressive symptoms contribute to caregiver's health decline
Medical News Bulletin | August 22, 2017
"As a caregiver caring for patients with cancer, the entire situation can be very mentally challenging. The effects of stress and depressive symptoms on the caregiver's health have not been well-studied. In an article published in Cancer, a group of researchers led by Kelly Shaffer conducted a study to determine the changes in the physical health of caregivers 2 to 8 years after the relative's cancer diagnosis and the several factors associated with it."
Security issues with health apps for dementia patients and caregivers uncovered by researchers, study
Science Daily | August 21, 2017
"Use caution when entering personal health information into a convenient app on your mobile device, because not all apps are created equal when it comes to protecting your privacy, warns McLean Hospital and Harvard Medical School clinicians. In a recent paper, a team of McLean Hospital researchers reported that many health apps designed to assist dementia patients and their caregivers have inadequate security policies or lack security policies altogether."
Survey finds more millennials see caring for a loved one with Alzheimer's as a 'positive' experience
ABC 8 News WRIC | August 21, 2017
"According to a new survey from the Alzheimer's Association, nine out of ten caregivers cite emotional stress as their greatest challenge.The survey also found millennials are more likely to see positive aspects of the experience compared to older caregivers. In fact, 85 percent of individuals in the 22 to 37 age group who were questioned say caring for someone with Alzheimer's strengthened relationships."
Study: Tired family caregivers linked to greater ER visits, higher health care costs for disabled elders
News Medical Life Sciences | August 24, 2017
"Emergency room staff call it a 'pop drop' - when a disabled older person comes in for medical attention, but it seems like the person who takes care of them at home is also seeking a break from the demands of caregiving. It's been hard to actually study the phenomenon. A new University of Michigan study suggests that tired family caregivers are associated with greater ER visits and higher overall health care costs for the person they care for."
Cool Post of the Week
Hospice Photography Creates Legacy for Families
Next Avenue
Highlights from the Alliance
Caregiving: Yours, Mine and Ours
"In 1976, the concept of family caregiving was not talked about. It was a responsibility assumed by a spouse, parent, or child, the overwhelming majoirty of whom were female. There was no body of knowledge, nor was it covered in the media. This article summarizes the evolution of caregiving in the United States over the past fifty years."
Who Is My Brother's Keeper Now, an article written by the Alliance's Rick Greene and Gail Gibson Hunt, featured in ASA's journalGenerations, Summer 2017 edition. Learn more here.
Get Involved
Raising Awareness in Stroke Excellence (RAISE) Awards 2017
Deadline: August 31, 2017
The National Stroke Association's annual RAISE Awards initiative recognizes exemplary efforts from individuals and groups raising awareness about stroke across the continuum in their communities- including stroke prevention strategies, recognition of warning signs, and stroke recovery support. These awards not only recognize every day stroke heroes, but also encourage and inspire future community leaders to follow in their footsteps. Find more information and place your nominations here.
Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards Application
Deadline: September 11, 2017 | 8:00 PM ET
With support from The Rosalinde and Arthur Gilbert Foundation, Family Caregiver Alliance (FCA) is overseeing the annual Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards program, now in its 10th year! Find the application and more information here.
Public Comment for Healthy People 2030
Deadline: September 29, 2017
The U.S. Department of Health and Human Services (HHS) is soliciting written comments on the proposed framework for Healthy People 2030 that was developed by the Secretary's Advisory Committee on National Health Promotion and Disease Prevention Objectives for 2030 (Committee). This framework includes the Healthy People 2030 vision, mission, foundational principles, plan of action, and overarching goals - and it will guide the selection and prioritization of objectives for Healthy People 2030. Learn more and comment here.
Research Opportunities: Second Annual National Caregiving Conference
Deadline: October 15, 2017
Have you applied to conduct a caregiving research project and now need participants? Have you received a grant to research an issue and would like family caregivers and former family caregivers to participate in your research? CareGiving.com would love for you to conduct your research at their Second Annual National Caregiving Conference on November 10 and 11 in Chicago. Learn more and sign up here.
PCORI Seeking Patients and Caregivers
Deadline: Ongoing
The Patient Centered Outcomes Research Institute (PCORI) is seeking patients and caregivers to provide feedback on PCORI-funded studies. Currently, we are seeking caregivers to perform peer review on several upcoming studies. In addition, as new studies covering a broad range of topics are being funded all the time, we encourage anyone interested to apply. Reviewers are provided online training, receive a $50 honorarium and are thanked in the annual PCORI publication. Click here to learn more.
International Alliance of Carer Organization (IACO) Event
7th Annual International Carers Conference
International Carers Conference theme - Caring into the Future: the new world? - will focus on innovation, partnerships, future challenges and new opportunities. A stimulating program is being developed with challenging debates, thought-provoking presentations, interactive workshops and new exhibition zones to inspire, inform and drive forward sector collaboration. We are honored that the Alliance's President and CEO Gail Gibson Hunt (USA) and IACO Executive Advisor Rick Greene will participate.
What: 7th Annual International Carers Conference
Where: Adelaide, South Australia
When: October 4-6, 2017
Register here
Caregiving Events
AFA National Educating America Tour
September 14, 2017 | Washington, DC
AFA's Concepts in Care Educational Conferences will provide individuals throughout the nation the opportunity to hear experts on topics to include: access to healthcare, transitioning from home to residential care setting, safeguarding your space, long-term care, perceptions of aging, and clinical trials and research. Register here.
6th Annual Rare Patient Advocacy Summit
September 14-15, 2017 | Irvine, CA
The RARE Patient Advocacy Summit is a source of motivation and activation for families whose lives have been affected by rare disease. Annually, corporate stakeholders attend the event and become immersed in rare disease advocacy and gain valuable knowledge on patient and caregiver perspectives. Register here.
Us Against Alzheimer's: The National Alzheimer's Summit
October 3-5, 2017 | Washington, DC
The Summit will bring together the very best minds in Alzheimer's and dementia research and policy. Leaders and advocates from diverse communities will explore compelling topics, including early detection and diagnosis, brain health and prevention, progress on our path to an Alzheimer's cure and the economic impact of the disease for those living with Alzheimer's and their care partners. Register here.
Save the Date: Solving America's Long-Term Care Crisis
October 4, 2017 | Washington, DC
Please join Genworth's 2017 Long Term Care Symposium in Washington, D.C. to discuss the long term care challenges facing families, states and the private insurance market.This event will focus on specific solutions- public policy, regulatory, and others- to stem the growing crisis. Register for this event here.
2017 ARCH National Lifespan Respite Conference: Take Off with Respite!
October 11-13, 2017 | Huntsville, AL
The conference theme,Take Off with Respite!, reflects the incredible history of the space industry in Huntsville, AL, also known as Rocket City USA. It also reflects the mission of the respite care network - to rise to meet challenges, heighten awareness, and push innovation to ensure a safe landing for the nation's 43 million family caregivers. Register here.
National Research Summit on Dementia Care: Building Evidence for Services and Supports
October 16-17, 2017 | Bethesda, MD
The National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and the Foundation for the National Institutes of Health through private sector support. Register here.
The 30th Anniversary Summit of the Rosalynn Carter Institute for Caregiving
October 25-27, 2017 | Americus, GA
Join the Rosalynn Carter Institute for Caregiving for their 30th Anniversary Summit. The two-day summit will bring together caregivers of individuals with chronic illnesses and/or disabilities across the lifespan along with leaders who enable caregiver support including stakeholders, funders, and policymakers. Early bird ticket prices end August 31. Learn more & register.
Second Annual National Caregiving Conference
November 10-11, 2017 | Chicago, IL
The Second Annual National Caregiving Conference brings together family caregivers, former family caregivers and professionals who work with family caregivers. Anyone interested in the caregiving experience and issues impacting family caregivers is welcome to attend. This year's conference theme is Our Boldest Hours: Before. During. After. Register here.
Do you have family caregiving news to share? Send to Jessica at jessica@caregiving.org
National Alliance for Caregiving
4720 Montgomery Lane, Suite 205
Bethesda, Maryland 20814, United States
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