The National Alliance for Caregiving for Friday, September 29, 2017
This Week In Caregiving
September 23-29, 2017
Caregiving in the News
Center for American Progress | September 27, 2017"Paid family and medical leave has emerged as an important step toward modernizing the workplace. Research consistently shows that both men and women-across race, ethnicity, gender, economic status, age, and political affiliation-support a comprehensive program to provide paid family and medical leave to assist with family caregiving or personal medical needs."
NextAvenue (Emily Gurnon) | September 26, 2017
"The cost of long-term care just keeps going up and most Americans keep believing - incorrectly - that the government will cover most or all of it. Those are the findings of a new report, the Genworth 2017 Cost of Care Survey, released today by Genworth Financial. 'Our population is aging, living longer, and not prepared,' said David O'Leary, president and CEO of Genworth's US Life division."
Kaiser Health News (Judith Graham) | September 21, 2017
"Every time Jacque Pearson tried to devise a plan to move her 81-year-old dad, who has Alzheimer's, from his home in Boise, Idaho, to hers in Denver, she felt stuck. Then, two weeks ago, she had a breakthrough. It happened at an AARP-sponsored session in which Pearson created a 'CareMap' - a hand-drawn picture showing all the people she cares for as well as the people surrounding those individuals and her own sources of support."
Family Caregiver Action | September 25, 2017
"Palliative care, also increasingly known as Supportive Care, may be one of the most misunderstood terms in healthcare. Many people believe it's the same as hospice care and it means the end of life. But palliative care is different from hospice, and when put in place, palliative care can bring hope, control, and a chance at a better quality of life for seriously ill patients and their caregivers."
Participate in the Rare Disease Caregiving Study
Do You Care for Someone Rare?
To study the impact of rare disease on unpaid friends and family members who provide care (known as "family caregivers"), the Alliance and Global Genes, are launching a "first-of-its-kind" national snapshot of rare disease caregivers. This fall, the two groups plan to release a national survey aimed at collecting feedback from over 1,000 family caregivers of children and adults with rare diseases. Learn more and take the survey here.
Cool Post of the Week
Wired
Policy Alert
The RAISE Family Caregivers Act, introduced by Senators Susan Collins (R-ME) and Tammy Baldwin (D-WI), has passed the Senate and is heading to the House of Representatives. Currently, the RAISE Family Caregivers Act in the House (H.R. 3759) has 17 cosponsors. The RAISE Family Caregivers Act would require the Secretary of Health and Human Services to develop a strategy to support family caregivers. The bill would establish an advisory body to bring together representatives from both the private and public sectors to advise and make recommendations. The strategy would identify recommended actions that communities, providers, government, and others are taking and may take to recognize. and support family caregivers and be updated biennially." The Alliance is excited to sign on in support of this bill. Please urge your members in the House of Representatives to support this bill. On September 26, members of the United States Senate voted in unanimous support the Creating High-Quality Results and Outcomes Necessary to Improve Chronic (CHRONIC) Care Act of 2017 and is now heading to the House. The CHRONIC Care Act contains several provisions that ensure Medicare beneficiaries living with advanced illness receive the highest quality care, including: Extending the Independence at Home demonstration program for two years, which provides home-based primary care services and advance care planning to frail elders in the home setting and Commissioning the GAO to conduct a study on the establishment of a payment code for a visit for longitudinal comprehensive care planning services. Read the bill here.
The Alliance is excited to support many other pieces of legislation surrounding family caregivers. Find more information and the list of legislation here.
Get Involved
Deadline: October 2, 2017 With support from The Rosalinde and Arthur Gilbert Foundation, Family Caregiver Alliance (FCA) is overseeing the annual Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards program, now in its 10th year! Find the application and more information here.
Deadline: March 18, 2018
When people hear that you are a caregiver what do they tell you? This project will explore how people in the general population view caregivers through a 10 minute survey. The research is being conducted as part of a Dissertation Research project in the Department of Psychology and Neuroscience at the University of North Carolina, Chapel Hill. The study seeks to recruit 2,000 caregivers by March 2018. Learn more and participate here.
Ongoing
Linnaeus University is recruiting for two positions to assist with the an EU Horizon 2020 project to research and develop support for young carers and two positions to assist with an International Research Program regarding Sustainable Care Systems for the future. Read more about the positions and apply here.
Caregiving Events
October 11-13, 2017 | Huntsville, ALThe conference theme,Take Off with Respite!, reflects the incredible history of the space industry in Huntsville, AL, also known as Rocket City USA. It also reflects the mission of the respite care network - to rise to meet challenges, heighten awareness, and push innovation to ensure a safe landing for the nation's 43 million family caregivers. Register here.
October 16-17, 2017 | Bethesda, MD
The National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and the Foundation for the National Institutes of Health through private sector support. Register here.
November 10-11, 2017 | Chicago, IL
The Second Annual National Caregiving Conference brings together family caregivers, former family caregivers and professionals who work with family caregivers. Anyone interested in the caregiving experience and issues impacting family caregivers is welcome to attend. This year's conference theme is Our Boldest Hours: Before. During. After. Register here.
Do you have family caregiving news to share? Send to Jessica at jessica@caregiving.org
The National Alliance for Caregiving
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National Alliance for Caregiving
Bethesda, Maryland 20814, United States
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