The National Alliance for Caregiving - Friday, September 8, 2017
This Week In Caregiving
September 2-8, 2017
Policy Alert
Strengthen America's Working Family Caregivers! The Time Has Come for Paid Family and Medical Leave. 6 of 10 caregivers report having experienced at least one impact or change to their employment situation as a result of caregiving, such as cutting back on their working hours, taking a leave of absence, receiving a warning about performance or attendance, or other such impacts. Better support for family caregivers is critical because often it is their availability that determines whether a person with an illness or disability can remain in his or her home. The Family and Medical Insurance Leave (FAMILY) Act (S. 337/H.R. 947) of 2017 would provide workers with up to 12 weeks of partial income when they take time to serve in their role as the caregiver.
The Alliance is proud to support the FAMILY Act of 2017 introduced by Senator Gillibrand and Representative Rosa DeLauro. Find our the letter of support here.
In The News
Medicaid: What we learned from the recent debate and what to watch for in September 2017Kaiser Family Foundation | September 5, 2017
"Medicaid provides health insurance coverage for about one in five Americans, also provides financing for the safety net, and is the largest payer for long-term care services in the community and nursing homes for seniors and people with disabilities.The inclusion of major Medicaid changes in both the American Health Care Act (AHCA) that passed in the House and the Better Care Reconciliation Act (BCRA) considered in the Senate revealed that is hard to gain consensus on significant cuts and reforms to Medicaid."
How robots could help bridge the elder-care gap
CNBC | September 6, 2017
"Despite innovations that make it easier for seniors to keep living on their own rather than moving into special facilities, most elderly people eventually need a hand with chores and other everyday activities. Caregivers often can't do all the work. Growing evidence indicates it's neither sustainable nor healthy for seniors or their loved ones. Yet demand for professional caregivers already far outstrips far supply, and experts say this workforce shortage will only get worse."
Businesses are catering to the sandwich generation
Worchester Business Journal | September 4, 2017
"Most working professionals know the angst coming with raising children and meeting the demands of the workplace. Managing sick days and school vacations, and making it to extracurricular activities while meeting deadlines, is an unrelenting challenge. Now, imagine doing all of that while handling the care of an aging parent or other relative."
Alzheimer's Learning Day gives millennials a chance to step up
Markets Insider | September 5, 2017
"Currently, millennials make up 25 percent of family caregivers in the U.S., and the number of millennials caring for a parent or grandparent with Alzheimer's or other dementia related diseases must skyrocket to address a shrinking caregiver base. As the number of Alzheimer's diagnoses rises, the ratio of caregivers will shrink from 7:1 to 3:1 by 2050, and millennials may be tasked with taking on increased caring responsibilities, looking after both aging parents and grandparents."
Families raise money for research into rare diseases
KARE 11 | September 5, 2017
"The FDA just recently approved the first gene therapy available in the United States for childhood leukemia, ushering in a new frontier in medicine to reprogram a patient's own cells to attack a deadly cancer. The breakthrough is also bringing a long-awaited promise at the University of Minnesota for children undergoing treatment for rare, life-threatening diseases. An estimated 20 families whose children have undergone blood stem cell transplants for rare metabolic diseases, have joined together to launch a crowdfunding campaign to help University of Minnesota doctors."
Cool Post of the Week
Mental illness consumed my marriage- until this epiphanyPBS News Hour (Mark Lukach)
Get Involved
Hurricane Harvey Resources for People with Disabilities, Access & Functional NeedsOngoing
In response to the destruction of hurricane Harvey, FEMA has released various resources to help individuals with disabilities, access, and functional needs. Find the resources here. If you are looking to donate funds to help support older adults and those with disabilities affected by hurricane Harvey, we encourage you to donate to Leading Age here.
Public Comment for Healthy People 2030
Deadline: September 29, 2017
The U.S. Department of Health and Human Services (HHS) is soliciting written comments on the proposed framework for Healthy People 2030 that was developed by the Secretary's Advisory Committee on National Health Promotion and Disease Prevention Objectives for 2030 (Committee). This framework includes the Healthy People 2030 vision, mission, foundational principles, plan of action, and overarching goals - and it will guide the selection and prioritization of objectives for Healthy People 2030. Learn more and comment here.
Research Opportunities: Second Annual Caregiving Conference
Deadline: October 15, 2017
Have you applied to conduct a caregiving research project and now need participants? Have you received a grant to research an issue and would like family caregivers and former family caregivers to participate in your research? CareGiving.com would love for you to conduct your research at their Second Annual National Caregiving Conference on November 10 and 11 in Chicago. Learn more and sign up here.
International Alliance of Carer Organization (IACO) Event
7th Annual International Carers Conference
The International Carers Conference theme - Caring into the Future: the new world? - will focus on innovation, partnerships, future challenges and new opportunities. A stimulating program is being developed with challenging debates, thought-provoking presentations, interactive workshops and new exhibition zones to inspire, inform and drive forward sector collaboration. - What: 7th Annual International Carers Conference
- Where: Adelaide, South Australia
- When: October 4-6, 2017
- Register here
Caregiving Events
AFA National Educating America TourSeptember 14, 2017 | Washington, DC
AFA's Concepts in Care Educational Conferences will provide individuals throughout the nation the opportunity to hear experts on topics to include: access to healthcare, transitioning from home to residential care setting, safeguarding your space, long-term care, perceptions of aging, and clinical trials and research. Register here.
CDC Public Health Grand Rounds, "Healthy Aging: Promoting Well-being in Older Adults"
September 19, 2017 | National Webcast
This session of Public Health Grand Rounds experts, including the Alliance's COO, Grace Whiting, will discuss the impact the aging population will have on their caregivers, the public health system, and the aging themselves. Hear what CDC and public health officials are doing and what needs to be done. Watch the national webcast online here.
6th Annual Rare Patient Advocacy Summit
September 14-15, 2017 | Irvine, CA
The RARE Patient Advocacy Summit is a source of motivation and activation for families whose lives have been affected by rare disease. Annually, corporate stakeholders attend the event and become immersed in rare disease advocacy and gain valuable knowledge on patient and caregiver perspectives. Register here.
Alzheimer's Learning Day Webinar
September 21, 2017 | Webinar
Those living with Alzheimer's may include our parents, spouses, clients, co-workers, neighbors or grandparents, and they need us to understand more about the disease. We all have something to learn or share about Alzheimer's, as well as other forms of dementia. Join the Alliance and Home Instead on Alzheimer's Learning Day by pledging to participate and join us in participating in the family caregivers webinar. Register here.
Aging and I/DD: Planning for Growing Older Webinar
September 26, 2017 | Webinar
Dr. Kathie Bishop will review the aging process and discuss what successful aging looks like for people with I/DD. Kathie will address planning and skill-building to support people with complex medical needs and adults with I/DD who experience cognitive or functioning loss, possibly related to dementia. Dr. Bishop will also describe how people with I/DD and their families can work together to advocate to and with health care professionals. Register here.
Us Against Alzheimer's: The National Alzheimer's Summit
October 3-5, 2017 | Washington, DC
The Summit will bring together the very best minds in Alzheimer's and dementia research and policy. Leaders and advocates from diverse communities will explore compelling topics, including early detection and diagnosis, brain health and prevention, progress on our path to an Alzheimer's cure and the economic impact of the disease for those living with Alzheimer's and their care partners. Register here.
Save the Date: Solving America's Long-Term Care Crisis
October 4, 2017 | Washington, DC
Please join Genworth's 2017 Long Term Care Symposium in Washington, D.C. to discuss the long term care challenges facing families, states and the private insurance market.This event will focus on specific solutions- public policy, regulatory, and others- to stem the growing crisis. Register for this event here.
2017 ARCH National Lifespan Respite Conference: Take Off with Respite!
October 11-13, 2017 | Huntsville, AL
The conference theme,Take Off with Respite!, reflects the incredible history of the space industry in Huntsville, AL, also known as Rocket City USA. It also reflects the mission of the respite care network - to rise to meet challenges, heighten awareness, and push innovation to ensure a safe landing for the nation's 43 million family caregivers. Register here.
National Research Summit on Dementia Care: Building Evidence for Services and Supports
October 16-17, 2017 | Bethesda, MD
The National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and the Foundation for the National Institutes of Health through private sector support. Register here.
Do you have family caregiving news to share? Send to Jessica at jessica@caregiving.org
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