National Alliance for Caregiving for Friday, September 15, 2017
This Week In Caregiving
September 9-15, 2017
Caregiving in the News
From research to standard practice: advancing proven programs to support family caregivers of persons living with dementia AARP Public Policy Institute (Lynn Friss Feinberg) | September 11, 2017
Advancing evidence-based programs in community-based organizations, health care systems, or other "real world" settings should be a priority to support family caregivers of persons living with dementia. Read the new paper by AARP Public Policy Institute's Lynn Friss Feinberg to learn what is known about these effective programs, and what needs to be done to scale them up more rapidly.
National Title VI Program Survey: Serving Tribal Elders Across the United States
n4a | September 13, 2017
"A new n4a report finds that Title VI Native American aging programs enable tribal elders to live with independence and dignity and their homes and communities, but face unique challenges in providing services. The new report, National Title VI Program Survey: Serving Tribal Elders Across the United States, was released today at the National Title VI Training and Technical Assistance Conference."
Local program challenges community to participate in Alzheimer's Learning Day
The Conway Daily Sun | September 13, 2017
"On Alzheimer's Learning Day, Sept. 21, Home Instead Senior Care invites people to participate in two free live training webinars featuring leading experts in Alzheimer's and dementia care to better respond to the needs of individuals living with the condition. 'With our increasing aging population, it is likely that every American will be touched by Alzheimer's at some point' said Cindy Eichling, owner of the Home Instead Senior Care office serving Wolfeboro."
How to care for aging relatives while taking care of yourself
Bustle | September 13, 2017
"As a child, I always imagined that my grandparents would live forever. But, as we get older, so do they. And for many millennials, the responsibility falls on them to take care of their aging relatives, but some young caregivers are struggling with how to take care of themselves at the same time."
Grandparents make all the difference for traumatized kids
Next Avenue (Sally Abrahms) | September 12, 2017
"The 2017 State of Grandfamilies report, 'In Loving Arms: the Protective Role of Grandparents and Other Relatives in Raising Children Exposed to Trauma,' published by the nonprofit Generations United, points to the enormous benefits of having a kinship caregiver. Among them: better mental and behavioral health outcomes than for kids raised in foster care with non-relatives and extended family network, among others."
Recognizing and relieving sandwich generation caregivers stress
Markets Insider | September 12, 2017
"For many families, September ushers in the annual ritual known as 'back to school.' Dreaded by kids and celebrated by parents, the return to school marks a time of transition to more rigid schedules after a few months of fun and flexibility. But, for sandwich generation caregivers - those who are raising a family while caring for a parent with Alzheimer's disease- the new school calendar and all the activities associated with it can add to an already hectic schedule."
Many get hospice care too late
U.S. News and World Report | September 12, 2017
"Despite a growing list of debilitating symptoms during the final months of life, most seniors never receive end-of-life hospice care -- or they delay doing so until their last few weeks of life, new research finds. The National Hospice and Palliative Care Organization (NHPCO) points out that while stand-alone hospice centers do exist, in most cases, hospice care does not entail moving a patient to a facility, but is instead provided at home by visiting caregivers."
Participate in the Rare Disease Caregiving Study
Do You Care for Someone Rare?
To study the impact of rare disease on unpaid friends and family members who provide care (known as "family caregivers"), the Alliance and Global Genes, are launching a "first-of-its-kind" national snapshot of rare disease caregivers. This fall, the two groups plan to release a national survey aimed at collecting feedback from over 1,000 family caregivers of children and adults with rare diseases. Learn more and take the survey here.
Cool Post of the Week
Babylon Town creates 'respite park' for dementia patients, caregiversNewsday, Denise M. Bonilla
Get Involved
Linnaeus University is currently recruiting suitable persons in cooperation with the SFCCC (Nka)Ongoing
Linnaeus University is recruiting for two positions to assist with the an EU Horizon 2020 project to research and develop support for young carers and two positions to assist with an International Research Program regarding Sustainable Care Systems for the future. Read more about the positions and apply here.
Public Comment for Healthy People 2030
Deadline: September 29, 2017
The U.S. Department of Health and Human Services (HHS) is soliciting written comments on the proposed framework for Healthy People 2030 that was developed by the Secretary's Advisory Committee on National Health Promotion and Disease Prevention Objectives for 2030 (Committee). This framework includes the Healthy People 2030 vision, mission, foundational principles, plan of action, and overarching goals - and it will guide the selection and prioritization of objectives for Healthy People 2030. Learn more and comment here.
Participate in a research project on perception of caregivers!
Deadline: March 18, 2018
When people hear that you are a caregiver what do they tell you? This project will explore how people in the general population view caregivers through a 10 minute survey. The research is being conducted as part of a Dissertation Research project in the Department of Psychology and Neuroscience at the University of North Carolina, Chapel Hill. The study seeks to recruit 2,000 caregivers by March 2018. Learn more and participate here.
Caregiving Events
Alzheimer's Learning Day Webinar September 21, 2017 | Webinar
Those living with Alzheimer's may include our parents, spouses, clients, co-workers, neighbors or grandparents, and they need us to understand more about the disease. We all have something to learn or share about Alzheimer's, as well as other forms of dementia. Join the Alliance and Home Instead on Alzheimer's Learning Day by pledging to participate and join us in participating in the family caregivers webinar. Register here.
Aging and I/DD: Planning for Growing Older Webinar
September 26, 2017 | Webinar
Dr. Kathie Bishop will review the aging process and discuss what successful aging looks like for people with I/DD. Kathie will address planning and skill-building to support people with complex medical needs and adults with I/DD who experience cognitive or functioning loss, possibly related to dementia. Dr. Bishop will also describe how people with I/DD and their families can work together to advocate to and with health care professionals. Register here.
Us Against Alzheimer's: The National Alzheimer's Summit
October 3-5, 2017 | Washington, DC
The Summit will bring together the highest level experts in Alzheimer's and dementia research and policy. Leaders and advocates from diverse communities will explore compelling topics, including early detection and diagnosis, brain health and prevention, progress on our path to an Alzheimer's cure and the economic impact of the disease for those living with Alzheimer's and their care partners. Register here.
Save the Date: Solving America's Long-Term Care Crisis
October 4, 2017 | Washington, DC
Please join Genworth's 2017 Long Term Care Symposium in Washington, D.C. to discuss the long term care challenges facing families, states and the private insurance market.This event will focus on specific solutions- public policy, regulatory, and others- to stem the growing crisis. Register for this event here.
2017 ARCH National Lifespan Respite Conference: Take Off with Respite!
October 11-13, 2017 | Huntsville, AL
The conference theme,Take Off with Respite!, reflects the incredible history of the space industry in Huntsville, AL, also known as Rocket City USA. It also reflects the mission of the respite care network - to rise to meet challenges, heighten awareness, and push innovation to ensure a safe landing for the nation's 43 million family caregivers. Register here.
National Research Summit on Dementia Care: Building Evidence for Services and Supports
October 16-17, 2017 | Bethesda, MD
The National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and the Foundation for the National Institutes of Health through private sector support. Register here.
Second Annual Caregiving Conference
November 10-11, 2017 | Chicago, IL
The Second Annual National Caregiving Conference brings together family caregivers, former family caregivers and professionals who work with family caregivers. Anyone interested in the caregiving experience and issues impacting family caregivers is welcome to attend. This year's conference theme is Our Boldest Hours: Before. During. After. Register here.
Do you have family caregiving news to share? Send to Jessica at jessica@caregiving.org
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