National Alliance for Caregiving for Friday, October 6, 2017
This Week In Caregiving
September 30 - October 6
Caregiving in the News
Heart failure caregivers face critical gaps in resources and support, new international study showsIACO (Press Release) | October 3, 2017
"The International Alliance of Carers Organizations (IACO), supported by Novartis, has released a first-of-its-kind global study examining the role and impact of heart failure caregiving. Presented at the 7th International Carers Conference in Adelaide, Australia, the Carers of Persons with Heart Failure study analyzed data collected from more than 500 heart failure carers in Australia, Canada, the United Kingdom, and the United States to determine the key challenges that they face."
Moving dementia caregiver support services into the mainstream
AARP (Lynn Friss Feinberg) | October 2, 2017
"Addressing the needs of dementia caregivers is important because of the growing number of older people living at home with dementia who rely primarily on their families for help with basic tasks of daily living. According to a report from the Centers for Disease Control and Prevention (CDC), the proportion of people with dementia dying at home increased significantly between 1999 and 2014, from 13.9 percent in 1999 to 24.9 percent in 2014, underscoring the increasing numbers of people with dementia residing outside of a nursing home setting."
Resources for Spanish-speaking caregivers
National Institute on Aging | October 2, 2017
"NIA has recently released Spanish language versions of some of its Alzheimer's materials for caregivers. Copies are available online or hardcopy. For any questions about ordering hard copies please call the Alzheimer's Disease and related Dementias Education and Referral Center at 1-800-438-4380. Phones are answered Monday through Friday, 8:30am- 5:00pm (Eastern time). Please note that there is a limit of 25 hard copies per order."
The hidden population of caregiving youth in our schools
American Psychological Association (Ann Faraone, Connie Siskowski, & Carol D. Goodheart) | September 26, 2017
A new American Psychological Association blog, "The Hidden Population of Caregiving Youth in Our Schools" discusses challenges caregiving youth may face, both at home and at school, and how schools can identify and support these students. Read more about caregiving youth and resources to help in the APA Family Caregivers Briefcase.
Health caregiving market to be valued at US$ 218.4 billion by 2024
medGadget | October 3, 2017
Persistence Market Research's report, titled "Health Caregiving Market: Global Industry Analysis & Forecast, 2016-2024," estimates that increasing presence of nuclear families, that were instrumented by the popularity of "DINK" trend (Double Income, No Kids), has turned out to be a key factor driving the demand for health caregiving services."
Caregiving for Alzheimer's patients at risk in coming years, report says
USA Today | October 3, 2017
"American families are having fewer children and are more likely to be divorced or estranged and have fewer financial resources, Nick Eberstadt, an economist, wrote in a report released on Wednesday by advocacy group UsAgainstAlzheimer's. And although the country as a whole is incredibly wealthy, the typical family is not: Nearly half of all American families say they would be unable to afford a surprise $400 bill, according to the Federal Reserve."
Participate in the Rare Disease Caregiving Study
Do You Care for Someone Rare?
To study the impact of rare disease on unpaid friends and family members who provide care (known as "family caregivers"), the Alliance and Global Genes, are launching a "first-of-its-kind" national snapshot of rare disease caregivers. This fall, the two groups plan to release a national survey aimed at collecting feedback from over 1,000 family caregivers of children and adults with rare diseases. Learn more and take the survey here.
Cool Post of the Week
Is there a robot 'friend' in your future?Next Avenue
Policy Alert
RAISE Family Caregivers Act Passed SenateThe RAISE Family Caregivers Act, introduced by Senators Susan Collins (R-ME) and Tammy Baldwin (D-WI), has passed the Senate and is heading to the House of Representatives. Currently, the RAISE Family Caregivers Act in the House (H.R. 3759) has 17 cosponsors. The RAISE Family Caregivers Act would require the Secretary of Health and Human Services to develop a strategy to support family caregivers. The bill would establish an advisory body to bring together representatives from both the private and public sectors to advise and make recommendations. The strategy would identify recommended actions that communities, providers, government, and others are taking and may take to recognize. and support family caregivers and be updated biennially." The Alliance is excited to sign on in support of this bill. Please urge your members in the House of Representatives to support this bill.
CHRONIC Care Act Receives Unanimous Support in Senate
On September 26, members of the United States Senate voted in unanimous support the Creating High-Quality Results and Outcomes Necessary to Improve Chronic (CHRONIC) Care Act of 2017 and is now heading to the House. The CHRONIC Care Act contains several provisions that ensure Medicare beneficiaries living with advanced illness receive the highest quality care, including: Extending the Independence at Home demonstration program for two years, which provides home-based primary care services and advance care planning to frail elders in the home setting and Commissioning the GAO to conduct a study on the establishment of a payment code for a visit for longitudinal comprehensive care planning services. Read the bill here.
The Alliance is excited to support many other pieces of legislation surrounding family caregivers. Find more information and the list of legislation here.
Get Involved
Participate in National Caregivers MonthNovember 2017
"The Caregiver Action Network (CAN) is proud to be the organization that sets the theme for November's National Family Caregivers Month each year. This year's theme for National Family Caregivers Month in November 2017 is 'Caregiving Around the Clock.'" Join the Alliance, as we celebrate National Caregivers Month this November with CAN. Learn more about NCM here.
Participate in a research project on perception of caregivers
Deadline: March 18, 2018
When people hear that you are a caregiver what do they tell you? This project will explore how people in the general population view caregivers through a 10 minute survey. The research is being conducted as part of a Dissertation Research project in the Department of Psychology and Neuroscience at the University of North Carolina, Chapel Hill. The study seeks to recruit 2,000 caregivers by March 2018. Learn more and participate here.
Caregiving Events
2017 ARCH National Lifespan Respite Conference: Take Off with Respite!October 11-13, 2017 | Huntsville, AL
The conference theme,Take Off with Respite, reflects the incredible history of the space industry in Huntsville, AL, also known as Rocket City USA. It also reflects the mission of the respite care network - to rise to meet challenges, heighten awareness, and push innovation to ensure a safe landing for the nation's 43 million family caregivers. Register here.
Blue Star Cares Training for Wounded Warrior Caregivers
October 14 & 16 | Colorado Springs, CO (virtual availability)
Blue Stars Cares is conducting several caregiving trainings for caregivers of wounded, ill, or injured service members over the next month. The topics presented focus on problem-solving, dealing with difficult behaviors, communicating with loved ones and professionals, and self-care. Learn more and register here, virtual and in-person options available.
National Research Summit on Dementia Care: Building Evidence for Services and Supports
October 16-17, 2017 | Bethesda, MD
The National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers is a two-day meeting sponsored by the U.S. Department of Health and Human Services and the Foundation for the National Institutes of Health through private sector support. Register here.
Second Annual Caregiving Conference
November 10-11, 2017 | Chicago, IL
The Second Annual National Caregiving Conference brings together family caregivers, former family caregivers and professionals who work with family caregivers. Anyone interested in the caregiving experience and issues impacting family caregivers is welcome to attend. This year's conference theme is Our Boldest Hours: Before. During. After. Register here.
Do you have family caregiving news to share? Send to Jessica at jessica@caregiving.org
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