National Alliance for Caregiving for Friday, October 13, 2017
This Week In Caregiving
October 7-13
Caregiving in the News
AARP launches major effort to raise awareness on the impact of family caregiving on U.S. LatinosAARP (Press Release) | October 10, 2017
"AARP announced the launch of an effort to raise awareness of the daily challenges faced by many U.S. Latino family caregivers, anchored by the release of a Spanish-language documentary, titled Cada Paso del Camino (Every Step of the Way). The film showcases the powerful and emotional stories of four Latino family caregivers, including popular Spanish-language television personality and outspoken caregiver, Marco Antonio Regil. Ultimately, the documentary aims to start a conversation among Latinos on how to best plan for and manage the family caregiver role."
Poll: Adult caregivers overwhelmed and undertrained
Brunswick News | October 9, 2017
"Adult caregivers looking after aging relatives and friends have little training for their stressful roles but still find the experience rewarding, according to a poll releasedThursday. The Associated Press-NORC Center for Public Affairs Research survey finds that long-term caregivers don't just provide rides to the doctor and run errands. Nearly half perform some kind of medical care, from changing bandages (30 percent) to inserting catheters or feeding tubes (6 percent)."
House passes on second reading bill protecting caregivers
GMA News | October 7, 2017
"The House of Representatives has approved on second reading a proposed measure designed to protect the welfare of caregivers and professionalize the caregiving sector. House Bill 6396 or the proposed 'Caregivers Welfare Act' lays out the rights and benefits that caregivers can expect once the proposed measure is signed into law, including the ability terminate an employment on the grounds of physical, verbal, emotional, abuse and "inhuman treatment" by employers."
News report on unpaid eldercare in the United States
Sierra Sun Times | October 7, 2017
"Sixteen percent of the civilian non-institutional population age 15 and over (41.3 million people) provide unpaid eldercare, the U.S. Bureau of Labor Statistics reported. About one-fourth (26 percent) of eldercare providers engage in unpaid eldercare on a given day, spending an average of 2.8 hours providing this care. These estimates are averages for the 2-year period of 2015-16." Find the report here.
You asked: How can I spot early signs of dementia in an aging parent?
TIME | October 11, 2017
"Your father keeps misplacing his keys, or your mother repeats herself. Should you be worried about dementia? If those seemingly minor issues are new ones, you're right to be concerned.'People tend to attribute too much to normal aging and are a little dismissive of cognitive loss,' says Dr. Paul Fishman, a professor of neurology at the University of Maryland School of Medicine and a neurologist at UMD's Medical Center. 'Dementia is very common, and in general it is under-diagnosed, rather than over-diagnosed.'"
Participate in the Rare Disease Caregiving Study
Do You Care for Someone Rare?
To study the impact of rare disease on unpaid friends and family members who provide care (known as "family caregivers"), the Alliance and Global Genes, are launching a "first-of-its-kind" national snapshot of rare disease caregivers. This fall, the two groups plan to release a national survey aimed at collecting feedback from over 1,000 family caregivers of children and adults with rare diseases. Learn more and take the survey here.
Cool Post of the Week
A Young Adult Learns from Lung Cancer CaregivingCure
Policy Alert
RAISE Family Caregivers Act Passed SenateThe RAISE Family Caregivers Act, introduced by Senators Susan Collins (R-ME) and Tammy Baldwin (D-WI), has passed the Senate and is heading to the House of Representatives. Currently, the RAISE Family Caregivers Act in the House (H.R. 3759) has 17 cosponsors. The RAISE Family Caregivers Act would require the Secretary of Health and Human Services to develop a strategy to support family caregivers. The bill would establish an advisory body to bring together representatives from both the private and public sectors to advise and make recommendations. The Alliance is excited to sign on in support of this bill. Please urge your members in the House of Representatives to support this bill.
CHRONIC Care Act Receives Unanimous Support in Senate
On September 26, members of the United States Senate voted in unanimous support the Creating High-Quality Results and Outcomes Necessary to Improve Chronic (CHRONIC) Care Act of 2017 and it is now heading to the House. The CHRONIC Care Act contains several provisions that ensure Medicare beneficiaries living with advanced illness receive the highest quality care, including: extending the Independence at Home demonstration program for two years, which provides home-based primary care services and advance care planning to frail elders in the home setting and Commissioning the GAO to conduct a study on the establishment of a payment code for a visit for longitudinal comprehensive care planning services. Read the bill here.
The Alliance is excited to support many other pieces of legislation surrounding family caregivers. Find more information and the list of legislation here.
Get Involved
Participate in National Caregivers MonthNovember 2017
"The Caregiver Action Network (CAN) is proud to be the organization that sets the theme for November's National Family Caregivers Month each year. This year's theme for National Family Caregivers Month in November 2017 is 'Caregiving Around the Clock.'" Find more information here.
Participate in a research project on perception of caregivers
Deadline: March 18, 2018
When people hear that you are a caregiver what do they tell you? This project will explore how people in the general population view caregivers through a 10 minute survey. The research is being conducted as part of a Dissertation Research project in the Department of Psychology and Neuroscience at the University of North Carolina, Chapel Hill. The study seeks to recruit 2,000 caregivers by March 2018. Learn more and participate here.
Caregiving Events
Blue Star Cares Training for Wounded Warrior CaregiversOctober 14 & 16 | Colorado Springs, CO (virtual availability)
Blue Stars Cares is conducting several caregiving trainings for caregivers of wounded, ill, or injured service members over the next month. The topics presented focus on problem-solving, dealing with difficult behaviors, communicating with loved ones and professionals, and self-care. Learn more and register here, virtual and in-person options available.
National Research Summit on Dementia Care: Building Evidence for Services and Supports
October 16-17, 2017 | Bethesda, MD
The National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers will convene researchers, service providers, persons with dementia, family caregivers, and other stakeholder groups to focus on research that is needed to improve quality of care and outcomes across care settings, including quality of life and the lived experience of persons with dementia and their caregivers. Visit here to register for the videocast.
Second Annual Caregiving Conference
November 10-11, 2017 | Chicago, IL
The Second Annual National Caregiving Conference brings together family caregivers, former family caregivers and professionals who work with family caregivers. Anyone interested in the caregiving experience and issues impacting family caregivers is welcome to attend. This year's conference theme is Our Boldest Hours: Before. During. After. Register here.
Do you have family caregiving news to share? Send to Jessica at jessica@caregiving.org
National Alliance for Caregiving
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